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Hi all, it's been a long time!

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  • Hi all, it's been a long time!

    Hi everyone. I just popped on to see what's new here. I haven't been on the ICN for probably a year now. Alot has changed in my life. I'm now divorced which I'm sure alot of you will be happy to hear that. I'm currently single, still dealing with IC and severe pain but have learned to not let my IC rule my life. I'm enjoying getting to know myself again and working on being the best Mom that I can possibly be. I can't believe all the new members, WOW! I just wanted to say helloo...
    Love from far away,
    Tracy K

    Current & Past Health Diagnosis(s)
    Currently suffering from 2nd Bladder Prolapse
    Interstitial Cystitis- March 2004
    Fibromyalgia 2004
    Chronic Fatigue Syndrome 2005
    Severe Pelvic Floor Dysfunction
    Irritable Bowel Syndrome
    Tension & Migraine Headaches
    Chronic/Severe Urinary Retention
    Numerous Endometriosis/Adhesions Removal Surgeries
    Pelvic Organ Prolapses (Uterus/Vaginal Walls, Bladder, & Rectum)
    Partial Hysterectomy 1997
    Ovaries Removed due to large cysts 1998
    Chronic UTI's (ongoing)
    Medtronic Interstim Unit removed after 5 months due to severe infection and unit was floating around in my lower back 2004

    Never be ashamed to ask for help when you need it.

    God will never give me more than I can handle, but sometimes I wonder if he lost track of what's he's dealt out here ???? I'm trying here

  • #2

    Hello Tracy and Welcome Back!

    I'm glad to hear that you are finding ways of coping with the IC and trying to not let it rule your life. It's good to see you.

    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at: and

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.


    • #3
      Welcome back Tracy! I have wondered about you often. I'm glad to hear that you are getting your life on track and making yourself happy! I can't say that I'm happy to hear you are divorced, thats usually not something to celebrate, but I AM glad to hear that you are doing well on your own, and finding yourself again.

      There are lots of new members because the board was made private and you can't read it anymore without logging in! So we have LOTS of new people around.

      Glad to hear from you!

      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


      • #4
        It's good to hear from you. I've been wondering how you're doing.

        Warm hugs,
        Stay safe

        Elmiron Eye Disease Information Center -
        Elmiron Eye Disease Fact Sheet (Downloadable) -

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help:


        Diet list:

        AUA Guidelines:

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #5
          Hi!!! Welcome back! I have also wondered about you often. I am glad that things are looking up for you. We have missed you around here. It is good to hear from you.



          • #6
            Good to hear from you. Glad things for you and the girls are getting better.


            • #7
              I too am so glad to hear from you!! And super happy things seem to be looking up for you! YAY!!!!!!

              BIG hugs!
              How do you eat an elephant? One bite at a time...

              Harry arrived 2/23/09!

              *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              IC Diet Cheat Sheet:

              IC dx'd Nov 2004
              Lymphocytic Colitis dx'd July 2005
              Possible IBS
              Current IC Meds
              Vistaril 25mg in the evening
              Previous IC Meds taken:
              Cystoprotek - 2 caps 2x's a day
              Elmiron, 100mg 3x's a day
              Ditropan, 5 mg 3x's a day
              Wellbutrin 150mg 2x's a day for Anxiety/IBS
              Pepcid 40mg a day for GERD
              Zytrec for Nasal Allergies
              Align Probiotic daily for IBS


              • #8
                HI Tracy.. So glad to hear from you. I think of you often and wonder how you are doing. From the tone in your thread I can tell you are doing better. It is amazing what stress will do to our lives and once we eliminate the stress how much better life can be.

                How are the girls doing.? Again so glad to hear from you. We will miss you around here.
                God grant me the serinity to withstand the days ahead!!!

                My myspace link...


                In Memory of My Father (Lawerence) 1/25/2007

                Interstim Sept 2001
                1st InterStim Removal May 2005
                2nd Interstim Implanted May 2005
                2nd InterStim Removed March 2007
                Hysterectomy 1999
                Tubes Tied 1997
                C-Section 1996

                Me and my kids

                Taylor (my daughter) Me and my daughter My son Cody and Taylor


                • #9
                  Hi, Tracy, we missed you! I'm glad things are looking up for you, and that you are still able to enjoy your children, even with these diseases. Hopefully there will be a cure soon, or at least good remedies that work for most everyone!