No announcement yet.

I am SO exhausted and it's getting ready to be worse this week!

  • Time
  • Show
Clear All
new posts

  • I am SO exhausted and it's getting ready to be worse this week!

    Sorry for venting, but I am so exhausted right now and it is getting ready to be worse. My husband is going out of town this week, and I will have to do all the bottle feeding of our baby goats while he is gone. (They have to eat every 4 hours, even in the middle of nite!) I also will have to bottle feed our 22 bottle calves twice a day.

    When I dont sleep, it sends me into a fibro flare which almost always causes me to have an IC flare. I am terrified this will happen!

    Please send me courage and pray this doesnt happen!

    Thanks for listening!

    Last edited by ihurttoo; 03-10-2007, 06:32 PM.

  • #2
    Yikes! That's a huge amount of work! Can anyone come to help you out a little? What do you do with these animals? (City girl here doesn't get it!)

    Sending a hug & hoping the week will go well & your health will remain stable.

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      We get the bottle calves from dairy farmers. They sell them b/c they sell the milk from the mothers. We feed them formula made for calves. We buy them for $100 to $125 each. We bottle feed them for a couple of months until they can eat hay, grass and/or grain. We usually keep them for about 7 months and sell them for about $800 each. So, it is a pretty decent profit.

      The baby goats are called kids. We keep the girls, (called nannies), since they can have babies (which on a farm makes the money). Then, we sell the boys. (These are called billys).

      The goats are usually shipped off from our local livestock market to other places. Goats are raised for meat, milk, and some for their fur, which is woven into certain woolen items. Lots of cheeses are made from goat milk.

      Normally, my husband takes care of all of the farm. My father usually does everything when my husband is out of town. But, this week, my Dad will be gone too.

      I am worried about all of it, but the middle of the night stuff is what really has me concerned. (Well, that, plus if any more of the goats have their babies while he is gone and have trouble having them! Sometimes they have difficulty having them if they are breech or whatever and they have to be pulled out. I have done it a couple of times, but I am certainly no pro! I just am scared something will happen that I havent seen before, since I normally dont get involved in all that.

      With the goats, it isnt affordable to call the vet with a problem because the vet bill would be worth more than the goat. So farmers generally do all of that themselves. Which is all well and good if one is a farmer, but I am not! Quite scary, huh?

      Thanks for hugs and well wishes! As you can see, I certainly need them!



      • #4
        Oh my goodness Amy! That sounds like so much work! I hope that you don't have a fibro/ic flare all at the same time. Sending hoping all goes well for you while hubby is away.

        I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
        1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
        2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
        I have tried every oral medication as well as rescue instills and DMSO.

        I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

        Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
        Also proud mom to the best Bullmastiff on earth, Claus


        • #5
          Oh Amy! That is a lot of work for one person. How about someone from the church coming over to give you a hand? There must be enough people to help out in shifts. I didn't know you lived on a farm? Always wanted to do that. Marry a guy who had a big farm but just milking cows. Couldn't bring myself to send them off to be eaten. I know someone has to but I get so attached to everything. Can't even eat our fish in the ponds becuase I think of them as pet fish. Hope you don't get to feeling worse. Maybe someone will volunteer to help you out? Hey, how about the girl scouts or boy scouts? They have kids who raise farm animals. Maybe one of the kids would like the experience?


          • #6
            Wow thats a load of work for 1 person. Hope all goes well. Take care of what you have to and if need be we will watch things here for you so you can rest as much as possible. Take it easy and don't over do it.


            • #7
              Sounds like a lot of work. Any possibility you could get a high schooler to help fairly inexpensively?

              Stay safe

              Elmiron Eye Disease Information Center -
              Elmiron Eye Disease Fact Sheet (Downloadable) -

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help:


              Diet list:

              AUA Guidelines:

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Anyone who says something is foolproof hasn't met a determined fool


              • #8
                Count me in with the "oh my gosh that's a lot of work for one girl!" whoa!!! I definitely agree you should try to find someone to help you out a bit! Even totally healthy that would be tough to pull off since you chase a little one around the inside of the house!

                Oh geesh, I could see it now, if it were me, none would ever get sold, they'd all be my pets and hubby and I would be broke, lol!!!
                How do you eat an elephant? One bite at a time...

                Harry arrived 2/23/09!

                *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                IC Diet Cheat Sheet:

                IC dx'd Nov 2004
                Lymphocytic Colitis dx'd July 2005
                Possible IBS
                Current IC Meds
                Vistaril 25mg in the evening
                Previous IC Meds taken:
                Cystoprotek - 2 caps 2x's a day
                Elmiron, 100mg 3x's a day
                Ditropan, 5 mg 3x's a day
                Wellbutrin 150mg 2x's a day for Anxiety/IBS
                Pepcid 40mg a day for GERD
                Zytrec for Nasal Allergies
                Align Probiotic daily for IBS


                • #9
                  WOW that all goes well this week. Good luck..
                  God grant me the serinity to withstand the days ahead!!!

                  My myspace link...


                  In Memory of My Father (Lawerence) 1/25/2007

                  Interstim Sept 2001
                  1st InterStim Removal May 2005
                  2nd Interstim Implanted May 2005
                  2nd InterStim Removed March 2007
                  Hysterectomy 1999
                  Tubes Tied 1997
                  C-Section 1996

                  Me and my kids

                  Taylor (my daughter) Me and my daughter My son Cody and Taylor


                  • #10
                    That is more work than a newborn! Hopefully you can find someone to pitch in to help.........a cousin or someone from your local church's youth group.

                    Rest when you can!
                    Tons of support,

                    IC angel helping families in need for the holidays. [email protected]


                    • #11
                      Man, oh, man! What a lot of work that is. GOOD luck, Amy. I will be thinking of you, girl.

                      Diagnosed August 2001

                      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

                      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


                      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


                      • #12

                        That's alot of work and sleep deprivaton!! I hope you can find a couple of teens who can help out. You probably wouldn't have to pay them a bundle, because most teens (esp. girls) love animals! Maybe you could ask a local school if they could get one of their teachers (biology, animal science) to ask their students if they want to earn some extra credit. Of course, you'd have to go through the whole school/parent/student approval thing, but it's just a possible idea. In the meantime, I'll be praying for God to give you extra strength each day (and night)!


                        -Bladder surgery to correct reflux-'68
                        -Terribly painful periods, beg.@ 13 (most likely due to endometriosis, no dx then)
                        -4 gyn surgeries since 2003 to remove cysts, ovaries, endometriosis and uterus
                        -DX'd w/I.C. before 3rd gyn surgery, but sure I've had it since childhood
                        -Gastrointestinal allergies to nuts and shellfish - {I would like to know if there is some connection of gastro allergies to I.C.?}
                        PTSD (sexual abuse by teenage boy when I was 4 and s. abuse by adult male who was friend of my Dad's - my parents still don't know)
                        -DX'd with IBS in 2000
                        -Rhabdomyolysis in 2001 (has not returned)
                        -DX'd with Eosinophilic Esophagitis (Asthma of the Esophagus) 3/07
                        -DX'd with TMJ in 2000-wear splint
                        -Hydrodistention and Cystoscopy w/ biopsy of tissue in bladder-2003
                        -DX'd with Epilepsy -2000
                        -SSS (Selective Sound Sensitivity)-wear earplugs most of the time to screen out certain noises
                        -DX'd with Fibromyalgia (2006)

                        Medications:MS Contin-30mg@3xday,Hydrocodone-10/650:up to 4day,Levothyroxine,Soma,Clonazepam,Vesicare,Keppra (anti-seizure),Flovent FHA 220mcg (swallowed for E.E.),Elmiron,Instillations-5+per week for flares,Lidocaine,Cysta-Q,Prelief, Dulcolax,Baby Aspirin(for FM),God blessed me w/2 boys: Devin-14 and Logan-9, Jim, my husband of 18+ years who sort of understands what I.C. is...still working on educating him!, my springer spaniel "Wookie" ('cause he makes sounds like 'Chewbacca' from "Star Wars" when my son plays with him) and the most important 'medicine' of all...PRAYER...because ONLY God knows the answer to why we are all going through this awful I.C.!


                        • #13
                          Any 4-H clubs in your area who would be willing to help?


                          • #14
                            Thinkng of You!


                            I'm sitting here with my Grandmother and we are talking about your post. She used to have a large farm. We think you are wonderful for everything that you do inspite of being so sick! I admire your strength and courage to take care of your farm. You are one of the most amazing women I know and I am so honored to know you. My thoughts and prayers are with you this week and always. Steve and Collin are very lucky to have you.

                            Love and BIG HUGS!!!!

                            Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                            "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                            I also have some journals of my journeys, past and some present at:

                            Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.


                            • #15
                              Thanks everyone for all your helpful ideas, thoughts and prayers. Steve just landed in San Francisco and called me. He had left a message for one of his friends and asked him to look after the cattle. The guy called him back and said he would. (Steve built his deck and a shed for him and didnt charge him anything. So, the guy said he wanted to help us out too. I will still have to take care of the goats. (The guy isnt crazy enough to take those on! ) But, at least I wont have to worry about the bottle calves. Whew!

                              I know I am still going to be pretty wiped out from the feeding the babies every 4 hours, but at least it gets the other load off of me.

                              Thanks you all again for all your suggestions and support! I dont know what I'd do without you guys!