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  • My daughter had a seizure!

    She was at the bus stop when she got dizzy, and passed out into the street. My youngest ran like crazy to get me and we got her in the house then to the ER. Her blood work was fine, but she can no longer ride horses or participate in P.E til she sees a pediatric neurologist. I missed my rheumatologist appt because we were at the ER with her.

    I am so worried about my baby girl. She's so beat up, big huge bruise on her forehead, all scratched up....I'm just beside myself. I know things happen to kids, but they don't just up and pass out, then seize!!! A passing bus driver stopped because she saw her "twitching" on the ground.

    What next? Sometimes I feel like I'm being tested here!
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

  • #2
    Oh No Sandy Hope she gets an appointment soon.

    Comment


    • #3
      Ohh god, is the little one sick normally or is this out of no where?? I will pray for her. I'm worried for her!
      ***Rachel***

      Dance like no one is watching
      Love like you've never been hurt
      Live today like it's your last

      Dxd with IC in June '06

      Comment


      • #4
        Sandy:

        Im so sorry this happened. Haven't you and your family been through enough already? Lets hope everything is ok.

        Erika
        IC diagnosed officially via cysto/urodynamics 1/26/07

        Grade II Endometriosis diagnosed via lap 12/11/07

        "Fall down seven times, Stand up eight."

        "Life is a tragedy for those who feel and a comedy for those who think."

        Current Treatments:
        Interstim Since 5/25/07!
        Birth Control

        Comment


        • #5
          omg I am so sorry. I am glad she is ok now.. I do hope that her appointmet is very soon. Please keep us posted on how she is.. In the mean times sending you really big hugs.
          'The will of God will never take you where the Grace of God will not protect you.'

          Comment


          • #6
            She's got a hiatal hernia but that has been controlled with Nexium. Otherwise she's been healthy. Yesterday she was complaining of a severe headache, but she's 14, and I passed it off as a simple headache, now I'm just not so sure.

            I just got her appt set up and it's not til the 26th with the neuro. I REALLY don't want to wait that long but I guess we have no choice.

            I'm scared for her, ya know??
            *IC-- Summer 2004; PFD--October 2005
            *Fibro--Fall 2000; CFS-- Fall 2000
            *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

            Total Abdominal Hysterectomy--adenomyosis--9\08

            04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

            Comment


            • #7
              Hi Sandy.
              I am so sorry about your daughter. I pray that she is ok and that she will get in to see the doctor soon. It may even be she has some weird virus, they can do strange things to people sometimes. You and your daughter are in my prayers that all will be ok Sandy.
              Jen

              Comment


              • #8
                My gosh! I hope everything is okay!! I'm so sorry.

                When John was still teaching high school at this all-boys prep school, one year kids started passing out one after the other, and a couple had seizures. One kid even passed out while peeing at the urinal and cracked his head wide open. It turned out to be some sort of virus and went away... but it was so damn strange.

                Let's hope it is something like this. I know, as a nurse, you are thinking of all the really bad things this could mean.... and I am too as someone in the medical field...but we both need to stop that for now. I'm sending ALL my positive energy your way and hoping that it will be some kind of fluke thing and not anything serious.
                ****
                Jen

                *Diagnosed with severe IC in 2004
                *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment


                • #9
                  OMG Sandy, I am so sorry..You poor thing and your daughter bless her heart..
                  Your family has been through so much.. I will keep you all in my thoughts and prayers
                  Hugs
                  Ronda

                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                  Link to Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Diet Reference Sheet:
                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                  Meds I have Tried:
                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                  Lexapro< Bad reaction to this med!
                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                  Dx With IC in Nov 2006 with Hydro/Cysto
                  Hydro/Cysto Caused Bladder to Rupture.

                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  Comment


                  • #10
                    Sandy...I know this is scary for you. I am sure your daughter is frightened, also. Let's hope this is just a virus or maybe even hormonal changes? I do wish she could have seen a doctor before the 26th.

                    Sending both of you lots of (((hugs)))...
                    Sharon

                    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                    Where I can be found most days.



                    Link to the ICN Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Link to the IC Diet:
                    http://www.ic-network.com/diet/


                    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment


                    • #11
                      OMG!! I am so sending you and her tons of hugs and lots of positive thoughts! I too hope (and I am sure it is - thinking uber postive here! ) it's something very explainable and simple and not permanent etc... Give yourself a hug for me, k? And then one for her!!!

                      Hugs!!!!
                      XOXO
                      Hugs,
                      Tracey
                      How do you eat an elephant? One bite at a time...

                      Harry arrived 2/23/09!



                      *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      IC Diet Cheat Sheet:
                      http://www.ic-network.com/diet/2009icdietlist.pdf



                      Dx's:
                      IC dx'd Nov 2004
                      Lymphocytic Colitis dx'd July 2005
                      Possible IBS
                      Current IC Meds
                      Vistaril 25mg in the evening
                      Previous IC Meds taken:
                      Cystoprotek - 2 caps 2x's a day
                      Elmiron, 100mg 3x's a day
                      Ditropan, 5 mg 3x's a day
                      Others:
                      Wellbutrin 150mg 2x's a day for Anxiety/IBS
                      Pepcid 40mg a day for GERD
                      Zytrec for Nasal Allergies
                      Align Probiotic daily for IBS

                      Comment


                      • #12
                        Sandy: I hope everything is ok with her? I know that is scary. Its lucky that she had someone to go and get you! Its too bad that her appt with the doc isn't till the 26th though. Let us know how it goes. Hopefully, its nothing major, just a virus like the others have said.

                        Comment


                        • #13
                          Omigosh. I hope she's okay --- and I hope you can get a new appointment for YOU quickly too. Others are right! Enough is enough --- and you've had enough!

                          Sending gentle hugs,
                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

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                          • #14
                            Sandy, I am praying for you. We have a few kids in school who have had seizures. It doesn't happen often and sometimes even go unnoticed. The poor thing! If there was another bus or her friends were watching from the bus, it will be very hard for her too, since they saw it. It could go either way, hopefully, they are caring children who will recognize that she needs their care and concern. At 14, you never want anyone to see you do something out of the ordinary. I will keep that in my prayers, also.
                            Maggie

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                            • #15
                              Hello Girls,
                              I talked to Sandy today, and she said her daughter is doing well. She dose have an appointment in the next wekk. They are on the cancelation list, which is very good. She asked me to post and let you know what was going on.
                              'The will of God will never take you where the Grace of God will not protect you.'

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