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Cancer, Wedding Showers and PAIN!

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  • #1

    Cancer, Wedding Showers and PAIN!

    Hi Everyone!

    I've been working on a quilt for my sister for her upcoming Wedding Shower in two weeks. We started it on Wednesday of last week. My Mother in Law is helping because I could NEVER accomplish this alone. (She just had a hip replacement) so we are both in rough shape. I'm also making one of these for my '"best friend" who has her wedding i4 days before my Sister's. It's been literally all of the blood, sweat, and tears I own in this body. I really wanted to do something nice for her that she would always remember. This is NOT my thing! It's utterly impossible to think while being so debilitated with pain. I've been battling some major infection on top of the pain I am normally in. Because my Mom is so sick with Cancer, I wanted to give my Sister something real special because she isn't getting any attention and this is after all her special day. Even though things are sad around here, I want to try to make her Wedding as positive as I can. But I need an outlet while I do this... We are taking some photos along our way. When it's finished I will take a better photo of it but for now this is all I have. As soon as we are done with it I will get the whole thing front and back. (I apologize to the "real" quilters out there) I am not good at this and have never done this before, so we had to make it a simple design.

    This is a photo of us putting the some 300 pins in tonight in order to get ready to start quilting tomorrow. You can click on it to get a larger view.



    This is us rolling it up for the night. You can sort of see part of the back.




    Since I share EVERYTHING with you all, I wanted to share this too!

    Finished Piece Coming in about a week......

    Kara
    Last edited by Kara29; 03-26-2007, 05:28 PM. Reason: spelling
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
    Tags: None
    • #2
      It's beautiful, Kara, and trust me, she will definitely appreciate it. When my daughter was born, one of her great-aunts made her a baby-size quilt, and we all treasure it. Now that my daughter is twelve, she has put the quilt away carefully so she will have it when her own first child comes along (not for another 20 years if I have any say in the matter!).

      You're doing a wonderful thing, but you always take too much on yourself. I wish you could spend more time resting, and of course I am always thinking of you and hoping for a resolution to your pain.
      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
      Wishing you happiness and good health, and all the best out of life.

      Peace, Carolyn
      ___________________________________________________

      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


      On the Beach with IC

        Comment

        • #3
          Cancer, wedding showers and pain? What a combination!!!

          The quilt looks beautiful! It is more than I could ever do. I am not good at stuff like that, so I am amazed when someone puts one together like that! Especially, when you are in so much pain! WOW!

          Good job, Kara!! It is so nice that your MIL is helping you too after having hip replacement surgery. You are both very strong women!!
          Meds I take:
          Elmiron, Elavil, Vagifem- for IC
          Albuterol, Flovent, Atrovent- for Asthma and lung problems
          Paxil, Clonazepam- for depression and Anxiety
          Atenolol- for rapid heart rate
          Nexium- for Gerd
          Levothyroxin- for Hypothyroidism
          Lasix, Pottasium- for edema
          Lipitor- for High Cholesterol
          I coated aspirin
          02 at bedtime

            Comment

            • #4
              That is gorgeous! Anyone would be happy to have that beauty!
              Hugs,
              Tracey
              How do you eat an elephant? One bite at a time...

              Harry arrived 2/23/09!



              *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              IC Diet Cheat Sheet:
              http://www.ic-network.com/diet/2009icdietlist.pdf


              Dx's:
              IC dx'd Nov 2004
              Lymphocytic Colitis dx'd July 2005
              Possible IBS
              Current IC Meds
              Vistaril 25mg in the evening
              Previous IC Meds taken:
              Cystoprotek - 2 caps 2x's a day
              Elmiron, 100mg 3x's a day
              Ditropan, 5 mg 3x's a day
              Others:
              Wellbutrin 150mg 2x's a day for Anxiety/IBS
              Pepcid 40mg a day for GERD
              Zytrec for Nasal Allergies
              Align Probiotic daily for IBS

                Comment

                • #5
                  Wow Kara..
                  I dont think I could have done such a good job even when im not in pain.. Your sister will truly love it.. I think gifts like that are so much more special then just going out and buying something..

                  I still do not know how you do it though, always thinking of someone else God Bless You!!!
                  Hugs
                  Ronda

                  ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                  Link to Patient Handbook:
                  http://www.ic-network.com/handbook/

                  Diet Reference Sheet:
                  http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                  Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                  Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                  Meds I have Tried:
                  Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                  Lexapro< Bad reaction to this med!
                  Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                  Dx With IC in Nov 2006 with Hydro/Cysto
                  Hydro/Cysto Caused Bladder to Rupture.

                  Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                  ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment

                    • #6
                      It's beautiful! And she will totally love it.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                       [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                        Comment

                        • #7
                          Kara:
                          This is just beautiful. Between the 3 of you ladies, your pain, your Mothers cancer and MIL hip replacement.

                          I'm not much when it comes to be creative, in fact, when my Grandmother was alive, she tried to teach me to knit, needless to say it was a disaster!
                          A handful of years ago (maybe 10?) I tried to knit a baby blanket-- it took me forever- finally did it, but someone had to help me by almost ripping it all out and starting over from the beginning. From that moment on, I decided that I was just going to buy things at the store!!

                            Comment

                            • #8
                              Wow... what a great quilt! I'd sure be happy to have it, so I am sure your sister will too.

                              I am really proud of you for how well you are handling everything
                              ****
                              Jen

                              *Diagnosed with severe IC in 2004
                              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                Comment

                                • #9
                                  I LOVE IT!!!!!!!! WOW!!!!!!!! What a wonderful gift.

                                  This should be you... ...You deserve to be proud of this gift from the heart.
                                  Sharon

                                  Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                                  Where I can be found most days.



                                  Link to the ICN Patient Handbook:
                                  http://www.ic-network.com/handbook/

                                  Link to the IC Diet:
                                  http://www.ic-network.com/diet/


                                  IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                    Comment

                                    • #10
                                      That is so sweet........Aren't women just the greatest?? Look at how you all are making this beautiful gift for your sister even though you all are going through so much yourselves. I think you all are the best
                                      Miss Bessie

                                      Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                                      Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                                      Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                                        Comment

                                        • #11
                                          Kara,
                                          How beautiful. She is so lucky to have you care about her so much.

                                          Hugs,
                                          Barb
                                          (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                                          [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                                          :angel: IC Angel Volunteer Coordinator :angel:
                                          :) Contact me via PM or e-mail if you would like to help
                                          I have learned all about life in 3 words: It goes on! :D--Robert Frost
                                          PCOS 7/85
                                          RSD 7/94 :headbang:
                                          Endometriosis 9/98 :toilet:
                                          Antiphospholipid antibody syndrome 9/99
                                          Kidney stones--too many to count
                                          Factor V Leiden mutation 10/02
                                          IC 6/03 :evilsmile
                                          Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
                                          "Spirit is an invisible force made visible in all of life"--Maya Angelou
                                          "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

                                            Comment

                                            • #12
                                              The quilt is beautiful! They are absolutely going to LOVE it! I am sure they will be blown away by your thoughful and selfless labor of love. I cant wait to hear their reaction when they receive it!

                                                Comment

                                                • #13
                                                  Kara it is beautiful! You sister will be so happy when she gets this.

                                                  Erika
                                                  IC diagnosed officially via cysto/urodynamics 1/26/07

                                                  Grade II Endometriosis diagnosed via lap 12/11/07

                                                  "Fall down seven times, Stand up eight."

                                                  "Life is a tragedy for those who feel and a comedy for those who think."

                                                  Current Treatments:
                                                  Interstim Since 5/25/07!
                                                  Birth Control

                                                    Comment

                                                    • #14
                                                      Very nice and I am sure she will love it!!!!
                                                      Jolene

                                                      "Life is what happens when you are making other plans" John Lennon

                                                      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                                                      Information for Patients can be found here.
                                                      http://www.ic-network.com/patientlinks.html


                                                      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                                                      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                                                      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

                                                        Comment

                                                        • #15
                                                          you know you are my Hero ! As I told your Mom tonight ! You Both are amazing ladies ! Love yeh! Sandra
                                                          "Never Give Up."

                                                          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

                                                          My Photobucket Link:
                                                          http://s237.photobucket.com/albums/f...ramack_photos/

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