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  • Update on GP appt!

    With all thats been going on with my dog I forgot to post about my own doctor's appt. I went on Monday to my GP after that loony rheumatology appt last week. He told me that he thought this other doctor's theory was crazy and he was going to take him off the referral list so nobody else had to listen to that garbage.

    He gave me prednisone to take at my own discretion, but no more than 10 mg per day. Hopefully I can get by on 2.5 mg, to 5 mg per day and stay symptom free. He ran all the Lupus tests that are very specific and we'll see how they come back. He was very kind to me and very reassuring, and hopefully nobody, at least nobody from his office, will ever be referred to that doctor again!

    Thank GOD for my GP. I don't know what I'd do without him!!
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

  • #2
    That is good news. I am sure you are relieved that he has helped you and believed you about that quacky so called doctor.

    How long before your tests come back?
    Sharon

    Shopping??? Did someone mention shopping? I'll get my hat... ;-)

    Where I can be found most days.



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    IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      Good for you, I am glad your GP has some sense about him.

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      • #4
        I'm so glad you shared that experience with your gp. You spared some other poor patient from his craziness at the cost of your dignity! We are here for you. Thank the lord your gp is the man he is!

        Erika
        IC diagnosed officially via cysto/urodynamics 1/26/07

        Grade II Endometriosis diagnosed via lap 12/11/07

        "Fall down seven times, Stand up eight."

        "Life is a tragedy for those who feel and a comedy for those who think."

        Current Treatments:
        Interstim Since 5/25/07!
        Birth Control

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        • #5
          He told me that he thought this other doctor's theory was crazy and he was going to take him off the referral list so nobody else had to listen to that garbage.
          Yay! I bet that was so reassuring for you. :woohoo:
          Kim

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

          *****************************

          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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          • #6
            Sounds like your GP is a keeper!

            Hugs,
            Donna
            Stay safe


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            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

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            • #7
              :woohoo:
              ****
              Jen

              *Diagnosed with severe IC in 2004
              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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              • #8
                So glad your GP believed you and will no longer be sending that quack referrals. :woohoo: I am also glad you got your lab work finished and hope you find out the cause of your problems.

                Hope you find a dose of Prednisone that works for you and start feeling better.

                Hugs,
                Amy

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                • #9
                  Sandy that's so great that your GP thinks that the other doc is a quack as well. I hope that you get to the bottom of everything and get to verify that you have lupus
                  Christine



                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus

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                  • #10
                    Glad to hear your appointment went well. Hopefully the prednisone at a low dose will help.

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                    • #11
                      I'm so glad the GP believed you and that he won't be subjecting any more of his patients to that quack!

                      Blessings,
                      Lori

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                      • #12
                        Glad that your appointment went well. Hopefully you will start feeling better soon.

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