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My Mother's Fight

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  • #1

    My Mother's Fight

    Before her second round of Chemotherapy out of 8 (16 weeks), We wanted to take a photo of my Mother before she gets really sick from her chemo. Although it's not noticeable in this photo, she has started to lose her hair already. Tomorrow is the big "hair cut". A very emotional time for our whole family. It means a lot for me to share this with you.




    Thank You all for your love and support during this time!

    Kara
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.
    Tags: None
  • #2
    I have your mom and your family in my prayers.. sending you big hugs..
    'The will of God will never take you where the Grace of God will not protect you.'

    Comment

    • #3


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        Your mom is in my prayers Kara. God bless you both.
        Jen

        Comment

        • #5
          I'm so sorry Hon, I'm afraid I knew it would come. She is a amazing lady with a amazing strength & a amazing daughter too! Love you ! Sandra & family . If you both need to talk or ask any questions you know where to find me.24 / 7
          "Never Give Up."

          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

          My Photobucket Link:
          http://s237.photobucket.com/albums/f...ramack_photos/

          Comment

          • #6
            Kara,
            You know you and your family are in my prayers.. Your mom seems to be a very strong woman just by the way you talk about her.. I will keep you and your family in my thoughts tomorrow...
            Hugs
            Ronda

            ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


            Link to Patient Handbook:
            http://www.ic-network.com/handbook/

            Diet Reference Sheet:
            http://www.ic-network.com/diet/icndi...tsheet0909.pdf

            Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

            Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

            Meds I have Tried:
            Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
            Lexapro< Bad reaction to this med!
            Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

            Dx With IC in Nov 2006 with Hydro/Cysto
            Hydro/Cysto Caused Bladder to Rupture.

            Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


            ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment

            • #7
              Big hugs and prayers headed to you and your Mom. You are a strong, loving family and will make it through this.

              Hugs,
              Barb
              (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

              [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
              :angel: IC Angel Volunteer Coordinator :angel:
              :) Contact me via PM or e-mail if you would like to help
              I have learned all about life in 3 words: It goes on! :D--Robert Frost
              PCOS 7/85
              RSD 7/94 :headbang:
              Endometriosis 9/98 :toilet:
              Antiphospholipid antibody syndrome 9/99
              Kidney stones--too many to count
              Factor V Leiden mutation 10/02
              IC 6/03 :evilsmile
              Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
              "Spirit is an invisible force made visible in all of life"--Maya Angelou
              "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

              Comment

              • #8
                I hate like everything that she, you, and your family have to go thru this! But, I know that you are definately a strong family and I am sure she draws strength from all of you.

                She remains in my prayers and will continue to be there until she is in the clear.

                When you are heaping hugs upon her, please tell her two are from me....one for her for being such an amazing person fighting this with all she's got, and one for being such a wonderful mother to you and role model for Mom's everywhere!

                Sending hugs for you too,
                Amy

                Comment

                • #9
                  I will be praying for you all tomorrow
                  Your Mom is a beautiful woman with a beautiful and gentle soul for a daughter
                  Miss Bessie

                  Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                  Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                  Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                  Comment

                  • #10
                    Meds I take:
                    Elmiron, Elavil, Vagifem- for IC
                    Albuterol, Flovent, Atrovent- for Asthma and lung problems
                    Paxil, Clonazepam- for depression and Anxiety
                    Atenolol- for rapid heart rate
                    Nexium- for Gerd
                    Levothyroxin- for Hypothyroidism
                    Lasix, Pottasium- for edema
                    Lipitor- for High Cholesterol
                    I coated aspirin
                    02 at bedtime

                    Comment

                    • #11
                      She is a very beutiful and courag. woman. I am sure you are very proud of her
                      God grant me the serinity to withstand the days ahead!!!

                      My myspace link...
                      www.myspace.com/patricia_luvs_matt

                      Patricia

                      In Memory of My Father (Lawerence) 1/25/2007

                      Procedures:
                      Interstim Sept 2001
                      1st InterStim Removal May 2005
                      2nd Interstim Implanted May 2005
                      2nd InterStim Removed March 2007
                      Hysterectomy 1999
                      Tubes Tied 1997
                      C-Section 1996

                      Me and my kids


                      Taylor (my daughter) Me and my daughter My son Cody and Taylor

                      Comment

                      • #12
                        Kara you and your mother are strong, beautiful women. Help each other out when you can. Prayer goes along way. Please don't neglect your own health during this time, as I know I would.

                        Erika
                        IC diagnosed officially via cysto/urodynamics 1/26/07

                        Grade II Endometriosis diagnosed via lap 12/11/07

                        "Fall down seven times, Stand up eight."

                        "Life is a tragedy for those who feel and a comedy for those who think."

                        Current Treatments:
                        Interstim Since 5/25/07!
                        Birth Control

                        Comment

                        • #13
                          (((((HUGS))))) for your mom and for you.
                          Sharon

                          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                          Where I can be found most days.



                          Link to the ICN Patient Handbook:
                          http://www.ic-network.com/handbook/

                          Link to the IC Diet:
                          http://www.ic-network.com/diet/


                          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                          Comment

                          • #14
                            THANK YOU ALL!

                            She's lost all of her hair as of today. She's fighting through it. Went to her dance class today and Work! I am so proud of her for trying to go as long as she can.

                            Kara
                            Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                            "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                            I also have some journals of my journeys, past and some present at:
                            http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                            Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                            Comment

                            • #15
                              I'm so sorry it's all gone, But it's only for a while & it will be back! She is a amazing lady!
                              Love to you both !
                              Sandra & Darin & the maine coon batch lol
                              "Never Give Up."

                              To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/

                              My Photobucket Link:
                              http://s237.photobucket.com/albums/f...ramack_photos/

                              Comment

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