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  • April SNOW Showers in NY!

    Before I lose my power. We are in the middle of a BIG Snow Storm in CNY Today. 23,000 of us without power. The pictures speak for themselves.

    You can click on them to see larger images:








    KEEP WARM FELLOW New Yorkers!
    Last edited by Kara29; 04-16-2007, 02:34 AM.
    Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

    "One hour at a time, this was NOT my American Dream but it has to work out somehow."

    I also have some journals of my journeys, past and some present at:
    http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

    Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

  • #2
    BURRRRRRRR ........... OMG Kara that looks so cold..........Please try to stay warm....
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      wow, you got snow.... Everyone in NJ got flooding!!! It's crazy everyone here at work called out b/c their basements are flooded. My basement is ok. Last night my bf and I were at a friends house watching the sopranos, just as it was finishing all of a sudden there was water everywhere. It was coming up from underground. It was crazy!!!! It's still raining here and I hope it stops soon.
      I heard for every inch of rain would be equivelent to 5 inches of snow... We had about 6 inches of rain last night... gosh couldnt imagine what it would be like if it snowed here. Looks like Kara29 got all the snow... We got nasty rain.

      Yucky!!!!
      ***Rachel***

      Dance like no one is watching
      Love like you've never been hurt
      Live today like it's your last

      Dxd with IC in June '06

      Comment


      • #4
        It looks like it's going to be a nice day in Oregon. I do remember the snows we used to get late in the season in Nebraska.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          I think the weather is going mad...

          here in Germany we had the wamest winter ever - and now we have temperatures like summer. People were bathing in the sea and having barbecues last weekend.

          This is the hottest April in the last 30 years:woohoo:
          I'm german, diagnosed september 2005 with mild IC. Current meds: Elmiron, Uropol-S, IC diet.

          Comment


          • #6
            I'm waiting for that weather to come here to NJ!! We want warm weather! lol I cait wait for those summer days of barbacues and hanging out on the back portch with our friends and relaxing. I love SUMMER!!!!
            ***Rachel***

            Dance like no one is watching
            Love like you've never been hurt
            Live today like it's your last

            Dxd with IC in June '06

            Comment


            • #7
              We are going to have a nice and warm day, somewhere in the 70's.
              Last Friday night, though we had a nice thunderstorm (if you want to call it NICE!!) HIGH WINDS in the 70's and rain, power outages everwhere. luckily it didn't go out where I live at. On Saturday though, it was cold and windy all day. We are having one crazy spring.

              Comment


              • #8
                I get to leave work at 3 due to seve flooding... everyone's basement are flooded up to your ankles!! It's getting bad here. In westchester, ny people are using floating rafts to get around. It's in the newspaper. The picture is kinda funny. It's an old couple sitting in the raft while a police man is pulling them through the water. The old couple look so happy its funny. It stinks for people's houses though. Wishing you all luck in this bad weather!
                ***Rachel***

                Dance like no one is watching
                Love like you've never been hurt
                Live today like it's your last

                Dxd with IC in June '06

                Comment


                • #9
                  I know that this week when it rain on Friday night, my son was called from home and asked to come to Church and help with the cleaning up because it got flooded. A few weeks ago, some elderly couple go trapped because they were trying to drive in the high water zone (they knew it was bad- but they just had to go across it) she was rescued but he couldn't be saved and he drown.- I think he was 85 or so- it was sad- especially the way the rescuers went about it- they only had 1 belt -or whatever you call it and yet they knew it was 2 people out there).

                  Comment


                  • #10
                    Keep warm, Kara! My parents are in Massachusetts and are likely having nasty weather as well.

                    We had horrible weather yesterday -- we were under a tornado watch all day, and we did have a few nasty thunderstorms, but no tornadoes near us. However, we got a TON of rain, and the wind really picked up. We have had sustained winds of 25-35 mph since last night, with gusts up to 60mph!! At home, we had no cable -- which meant no TV and no Internet -- last night and this morning.

                    I heard some branches fall outside last night, and small things pelted the roof all night -- we are in the woods, so today I am very worried that a tree will uproot and hit the house while we're at work.... ugh....

                    Anyway, the cable had better be back by tomorrow night for House!!! And we better not lose power. I hate that...
                    ****
                    Jen

                    *Diagnosed with severe IC in 2004
                    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment


                    • #11
                      Goodness Gracious, Kara! BRRRR!!!
                      Meds I take:
                      Elmiron, Elavil, Vagifem- for IC
                      Albuterol, Flovent, Atrovent- for Asthma and lung problems
                      Paxil, Clonazepam- for depression and Anxiety
                      Atenolol- for rapid heart rate
                      Nexium- for Gerd
                      Levothyroxin- for Hypothyroidism
                      Lasix, Pottasium- for edema
                      Lipitor- for High Cholesterol
                      I coated aspirin
                      02 at bedtime

                      Comment


                      • #12
                        yes when i talked to my mom this morning she said you guys had like 8 inches.i asked if she was ready to come visit us yet.lol.i hate to say it kara,but right about now i am glad to have moved to kentucky,were at 56 today,but this week were going back in the 70s!!!! being a central new yorker since birth,i am still getting used to this,although its not very hard!stay warm new yorkers.

                        Comment


                        • #13
                          You were lucky, Rachel, we had the sewage drains back up into our basement... I'll spare you all the details, we're all suffering enough without having to read a description of what raw sewage on carpet looks like... LOL ... it was really nasty and my husband did all the cleanup. Sometimes I really like that guy...
                          Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                          Wishing you happiness and good health, and all the best out of life.

                          Peace, Carolyn
                          ___________________________________________________

                          Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                          On the Beach with IC

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