No announcement yet.

I don't feel so doomed anymore

  • Filter
  • Time
  • Show
Clear All
new posts

  • I don't feel so doomed anymore

    I know I have probably posted too much about this but I can't share it with family so before I burst thought I would post it here. PT has really gone better then I could ever have hoped for. :woohoo: For me to be able to survive pain wise on the darvecet means a lot. When I went to PT this morning and told her about not taking the vicodin but the darvacet she was really surprised too. She knew vicodin was a whole lot stronger then the darvacet and I can't wait to tell my Uro tomorrow morning! He will be so happy I am sure. I don't have that feeling of being miserable for the rest of my life. For the first time since this has started (9 years) I feel like I can at least get back part of the old life I had which is fine. I told her how my pants are not so tight now but I haven't lost one pound. She said that was normal. You lose fat but gain muscle and muscle weighs more then fat. She also said to foget the scale and go by cloths so I put the scale away which I think is better. Not having to fear stepping on it. I don't know, I feel so happy I could just burst out crying sometimes. I want to conquer the world but my body isn't up to yet so need to take small cities at a time. Just thought I might even be able to get off the darvacet. :woohoo:

  • #2
    I am so glad the PT is working for you! You give hope to us "Newbies"
    dx: Spastic Bladder, chronic hematuria (that went away?), kidney stone... possible IC

    Medical History:
    c-sections: 1988, 1991, 1997
    Viral Arthritis 1998 (Like RA, but went away!! )
    Pterygium & Dry Eyes since 2005
    Hysterectomy (Fibroids) 2006


    Me & Jerry ~ Sammy & Ryan


    • #3
      :woohoo: .. One day at a time ...

      I am so glad you are feeling better, you really deserve this.. You have suffered long enough!! I hope you continue to feel better and have good days like today.. ((((((((((hugs))))))))))

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

      Link to Patient Handbook:

      Diet Reference Sheet:

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


      • #4
        Thanks! This might sound stupid but I feel like skipping around outside while throwing flowers through the air and singing "I can see clearly now the rain has gone". I just keep thinking about that song. Loved it when I was growing up and love it even more now.


        • #5
          I'm soooooo Happy for you :woohoo: :woohoo: I felt the same way when I started feeling better. Its so wonderful to find something that finally helps and makes you feel like the person you were before IC!!!!! Hope it continues to help more and more!!!!!


          • #6
            great.. sending you hugs
            'The will of God will never take you where the Grace of God will not protect you.'


            • #7
              I say if you want to go skipping young lady - you GO!! That's just so wonderful to hear it's given you a whole lotta' hope - hope is a good thing, and a great attitude can make it go far!!!

              Ok, I think time to put my scale away too, I tend to forget muscle weighs more than fat - that should be my mantra whenever I do get weighed, hee hee!!!

              Glad to hear you're seeing some results - that always seems to lift spirits when they are low and getting frustrated!
              How do you eat an elephant? One bite at a time...

              Harry arrived 2/23/09!

              *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              IC Diet Cheat Sheet:

              IC dx'd Nov 2004
              Lymphocytic Colitis dx'd July 2005
              Possible IBS
              Current IC Meds
              Vistaril 25mg in the evening
              Previous IC Meds taken:
              Cystoprotek - 2 caps 2x's a day
              Elmiron, 100mg 3x's a day
              Ditropan, 5 mg 3x's a day
              Wellbutrin 150mg 2x's a day for Anxiety/IBS
              Pepcid 40mg a day for GERD
              Zytrec for Nasal Allergies
              Align Probiotic daily for IBS


              • #8
                Sooooooooooooooo wonderful to hear. Yay! :woohoo:

                Diagnosed August 2001

                Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

                Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


                “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


                • #9
                  That is awesome :woohoo: :woohoo: :woohoo:

                  I just love your sense of humor and it is wonderful to know that you are feeling better

                  You are a little angel to so many people here and you always make me feel better too
                  Miss Bessie

                  Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                  Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                  Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life


                  • #10
                    I'm so happy for you!
                    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                    Wishing you happiness and good health, and all the best out of life.

                    Peace, Carolyn

                    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

                    On the Beach with IC


                    • #11
                      Mary that is wonderful. You go GIRL.

                      Sending hugs, Trishann


                      • #12
                        That's really great!

                        Stay safe

                        Elmiron Eye Disease Information Center -
                        Elmiron Eye Disease Fact Sheet (Downloadable) -

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help:


                        Diet list:

                        AUA Guidelines:

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                        Anyone who says something is foolproof hasn't met a determined fool