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  • #1

    can't sleep

    I am so tired and cannot sleep. I ran out of my Ambien, and Flexeril last Tuesday my pharmacy faxed the doctor, and I emailed the office. I am in a lot of fibro pain, which is keeping me awake. I called them today, and the pharmacy re faxed the info for my scripts. They said that they never got none of the 3 faxes from the pharmacy of the email.. Well I am sure that they did.. she told me that she would speak to the doctor and call me back.. Like I knew that was so not happening.. it just makes me so damn mad.. They say that you will have them filled with in 48 hours or a phone call if you need to come in... I am pretty mad, they have exceeded their 48 hour time limit a couple times over..
    'The will of God will never take you where the Grace of God will not protect you.'
    Tags: None
    • #2
      How annoying, they obviously dong understand how you feel...or dont care.

      I have had the same problem here too and when I call up to complain they have the cheek so sound annoyed with me on the phone!!! Makes me so angry.

      Make sure you call them again and give them a deadline to call you back...say lunch time!!!

      I know how horrible you must feel now as I suffer with ME which has similar symptoms and without my meds I cant sleep either.

      let me know how you get on
      x
      Started with symptoms 2004 after a severe infection.
      Was diagnosed with IC Feb 2006 after cystoscopy.
      Diagnosed with vulvodyina and PN in july 2006.
      Dignosed with ME and IBS Oct 2006.
      Currently taking Amytriptaline 50mg, regular pain killers and birth control!
      Also doing IC diet and regular use of heat packs.
      Still struggling with IC and controling my symptoms so looking for some help

      also recently had abnormal pap, CIN III and just had LEEP done 2007

        Comment

        • #3
          If your doctor's office is part of a larger medical facility, like a clinic or hospital, check to see if there is a patient advocate at the facility. If so that person's job is to help patients when they don't receive the care they are supposed to, such as refills in a timely manner.

            Comment

            • #4
              ((((hugs)))))

                Comment

                • #5
                  thanks gils, Jake and I just got up, I finally dosed off sometime after 3. I feel like I have been hit with a semi full of cement,
                  'The will of God will never take you where the Grace of God will not protect you.'

                    Comment

                    • #6
                      ((((((((((((Cindy))))))))))))))) I hope you start to feel better soon. I seem to have a head cold and aching all over so I can totally relate.
                      Christine



                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus

                        Comment

                        • #7
                          I hope they call back quickly.

                          Huuuugs,
                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                           [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                            Comment

                            • #8
                              ((((((((((Cindy))))))))))

                              Jake...You be a good boy for Mommy today, okay. She is tired and needs you to behave extra nice.
                              Sharon

                              Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                              Where I can be found most days.



                              Link to the ICN Patient Handbook:
                              http://www.ic-network.com/handbook/

                              Link to the IC Diet:
                              http://www.ic-network.com/diet/


                              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                Comment

                                • #9
                                  Jake is being a good boy, went to take a nape at 11:30 and is still sleeping, is chilly and rainy, good for naps.. lol.. I should be right in there sleeping too. I did get my meds called in I called the doctors office at 9 am and vented out my dismay with there lack of organisation their! They told me they never got the faxes or email. I asked her to double check the mail so I could get on my provider.. She said.. oh yea.. here it is, you did send it Tuesday, like you said.. alrighty then.. gggrrr... I'll sleep good tonight.. lol.. I do have to get up at 5:45 to be at the hospital by 6:45. My stim trial surgery is at 8:45 am.
                                  'The will of God will never take you where the Grace of God will not protect you.'

                                    Comment

                                    • #10
                                      Cindy,
                                      I didn't realize that was tomorrow morning! Good luck with your trial tomorrow! I hope all goes well
                                      Christine



                                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                                      I have tried every oral medication as well as rescue instills and DMSO.

                                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                                      Also proud mom to the best Bullmastiff on earth, Claus

                                        Comment

                                        • #11
                                          Cindy...I didn't realize it, either. Did you get it moved up? I thought it was scheduled for the same day as your court for Jake. I will be praying for you.

                                          ((((((((((hugs))))))))))
                                          Sharon

                                          Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                                          Where I can be found most days.



                                          Link to the ICN Patient Handbook:
                                          http://www.ic-network.com/handbook/

                                          Link to the IC Diet:
                                          http://www.ic-network.com/diet/


                                          IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                            Comment

                                            • #12
                                              Sharon.. the trial is tomorrow, the tpr is the 14th, the implant and the fostercare class is on the 16th.. me
                                              'The will of God will never take you where the Grace of God will not protect you.'

                                                Comment

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