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  • #1

    Oh my gosh! Don't believe it!

    Well, I think by now most of you have heard the stories about how nasty my boss can be, and how I was the only woman in the laboratory who didn't get flowers for her birthday...

    So, I've been super busy these last few weeks (hence my reduced presence on the boards). Yesterday, in particular, was just crazy, and I honestly didn't know what day it was when I got home because it felt like two days had passed.

    This morning, I came in all geared up to do more work, and I went barrelling over to my lab bench and started putting on gloves, etc. My one friend in the lab watched me and then started laughing at me. "Dummy," she said, "haven't you even seen your flowers?"

    I stopped in my tracks and said, "HUH?"

    She pointed to the table at the end of the row of lab benches, and sure enough, a big vase full of flowers was sitting on it. I went to it and it was addressed to me! Meanwhile, my friend is looking into my boss' office and saying "She didn't even see it."

    It was apparently delivered yesterday afternoon, likely when I was in the darkroom, or everyone's favorite place, the bathroom... and then everyone assumed that everyone else had told me about it. And I, of course, was not expecting anything and was too busy with this stupid experiment to be looking for changes in the laboratory scenery on my own anyway. Still, it makes me look really dumb, because they are like three feet high.... who misses that?????

    They are from Boss and coworkers, and the card says "Happy Birthday...Sorry it is Late!!!" So I thanked Boss and coworkers profusely

    Not sure what happened.... why he suddenly decided to do it. Maybe he really did forget though; he IS about to get married on Sunday, so I imagine that could be taking up some of his brain space.... LOL.

    I don't know. I'm not going to question it much... I'm just going to enjoy how pretty they look and how nice they smell as I'm sitting here
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    Tags: None
    • #2
      Wow Jen! That's great! So happy to hear that they finally treated you the way you deserve to be treated.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

        Comment

        • #3
          :woohoo: :woohoo: :woohoo: :woohoo:

          I am so happy for you Jen. You deserve it so much for all the crap you have had to endure there. They love having you

          Erika
          IC diagnosed officially via cysto/urodynamics 1/26/07

          Grade II Endometriosis diagnosed via lap 12/11/07

          "Fall down seven times, Stand up eight."

          "Life is a tragedy for those who feel and a comedy for those who think."

          Current Treatments:
          Interstim Since 5/25/07!
          Birth Control

            Comment

            • #4
              Good for him. It's about time he did something nice.
              Sharon

              Shopping??? Did someone mention shopping? I'll get my hat... ;-)

              Where I can be found most days.



              Link to the ICN Patient Handbook:
              http://www.ic-network.com/handbook/

              Link to the IC Diet:
              http://www.ic-network.com/diet/


              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Comment

                • #5
                  :woohoo:
                  Better give him lessons so he remembers to treat his new wife right too!!!!! I think that every woman should get flowers for her birthday (never happens for me, but it would be nice)

                    Comment

                    • #6
                      :woohoo:

                        Comment

                        • #7
                          That was real sweet of him. he's trying. Said he's getting married? So you are lesson 1, give him some pointers there. Make sure he doesn't forget his wife's b/d; or heaven forbid their anniversary!!! :woohoo: :woohoo:

                            Comment

                            • #8


                              Donna
                              Stay safe


                              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                              Have you checked the ICN Shop?
                              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                              Patient Help: http://www.ic-network.com/patientlinks.html

                              Sub-types https://www.ic-network.com/five-pote...markably-well/

                              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                               [3MG]

                              Anyone who says something is foolproof hasn't met a determined fool

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                                • #9
                                  how wonderful, glad you finally got acknowledged.
                                  'The will of God will never take you where the Grace of God will not protect you.'

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                                    • #10
                                      Happy be-lated birthday! I am glad that your boss and co-workers sent you the flowers!

                                      How is your implant going??? I haven't been on the boards much lately myself.

                                      Hugs!
                                      T83

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                                        • #11
                                          :woohoo: :woohoo:
                                          "Never Give Up."

                                          To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/7769467@N03/

                                          My Photobucket Link:
                                          http://s237.photobucket.com/albums/f...ramack_photos/

                                            Comment

                                            • #12
                                              Thanks all!! I was so surprised I almost fainted yesterday. Now I have the flowers on my desk in my cubicle downstairs, next to my computer. The lillies in the bouquet smell so lovely, and they are strong enough to scent the hallway where quite a few of my fellow postdocs sit. So they are pleasing everyone!!!

                                              Oh, I hope Boss keeps up the nice stuff. He alternates between mean and nice so fast it makes it a little stressful to go to work these days... never know what way he will be on any given day.

                                              I've found out that I'm not the only one feeling that way though... others have mentioned that he's been moody, and the whole lab atmosphere changes when he is away (like he has been off and on this week, since his family has come in from England in prep for the wedding tomorrow).

                                              Tracey -- my stim is doing great. No need for reprograms yet, no infections, nothing -- except blissful relief from the constant peeing!!! My pain level has decreased some as well, but I do have nasty flares.... and right now I think I've got an infection, so I feel crappy. But the stim is even keeping me from peeing too often with the infection
                                              ****
                                              Jen

                                              *Diagnosed with severe IC in 2004
                                              *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                                              *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                                              *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                                              **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                                                Comment

                                                • #13
                                                  yay!!! i'm happy for you. i do hope he keeps it up...you deserve it .
                                                  (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

                                                  Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

                                                  I'd like to be on House, MD as a medical mystery.

                                                  Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

                                                  Connor & Mommy by the tree:


                                                  Connor with Santa...so happy!


                                                  I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

                                                  Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

                                                  I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

                                                    Comment

                                                    • #14
                                                      Jen,

                                                      So nice to hear that something positive happend at work. Happy belated birthday to you.

                                                      Kara
                                                      Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

                                                      "One hour at a time, this was NOT my American Dream but it has to work out somehow."

                                                      I also have some journals of my journeys, past and some present at:
                                                      http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

                                                      Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

                                                        Comment

                                                        • #15
                                                          Jen, I am go glad tha your implant is working out. I still have some nasty flares as well, I guess that goes with it for most of us. Are you still needing pain meds? Isn't it wonderful to not have that pee every 15 minutes especially when in the car! While I still hate being in a car for very long, I guess that is my own ADD coming through, I am so grateful to not have to pray for a decent restroom at the next exit!

                                                          T83

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