-
-
eeeewwwww my mom was telling me about that, and the manager started laughing.. thats sick.'The will of God will never take you where the Grace of God will not protect you.'
-
OMG!! That is soooo gross!!!Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
Comment
-
They need their butts sued!!!Hugs
Ronda
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Link to Patient Handbook:
http://www.ic-network.com/handbook/
Diet Reference Sheet:
http://www.ic-network.com/diet/icndi...tsheet0909.pdf
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Comment
-
Oh -- that is just foul!Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
Wishing you happiness and good health, and all the best out of life.
Peace, Carolyn
___________________________________________________
Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007
On the Beach with IC Comment
-
Yuck!!Meds I take:
Elmiron, Elavil, Vagifem- for IC
Albuterol, Flovent, Atrovent- for Asthma and lung problems
Paxil, Clonazepam- for depression and Anxiety
Atenolol- for rapid heart rate
Nexium- for Gerd
Levothyroxin- for Hypothyroidism
Lasix, Pottasium- for edema
Lipitor- for High Cholesterol
I coated aspirin
02 at bedtimeComment
-
That's wrong. And gross. And just NASTY....ewww.
Medical "Issues":
IC
GERD
Tachycardia(resting rate is 125-130
)
Medicastions:
Tramadol-as needed (IC)-50mg
Elmiron 200mg twice a day
Levsin .125mg 1-2 pills 4 times a day
Comment
-
I can't see how that could possibly happen accidentally. Kind of reminds me of the finger in the chili!
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
Disgusting! Hopefully the manager, and everyone else involved loses their jobs! It seems like it should be considered a health issue. You know like when someone spits on a burger and gets arrested. This was outright horrible! I wonder if they filed a police report, or just went civil.Comment
-
need help with IC
my love one has IC and I just wanted to get some more information on this... I really want to understand so I can be more of a support than most.. can some one help me on this.....
sheilaLast edited by sheila and eddy; 05-13-2007, 03:50 PM.Comment
- Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first. It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
Tweet
Comment