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  • Just read this is a local paper

    It made me ill just thinking about it

  • #2
    eeeewwwww my mom was telling me about that, and the manager started laughing.. thats sick.
    'The will of God will never take you where the Grace of God will not protect you.'


    • #3
      OMG!! That is soooo gross!!!

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        They need their butts sued!!!

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          Oh -- that is just foul!
          Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
          Wishing you happiness and good health, and all the best out of life.

          Peace, Carolyn

          Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

          On the Beach with IC


          • #6
            Meds I take:
            Elmiron, Elavil, Vagifem- for IC
            Albuterol, Flovent, Atrovent- for Asthma and lung problems
            Paxil, Clonazepam- for depression and Anxiety
            Atenolol- for rapid heart rate
            Nexium- for Gerd
            Levothyroxin- for Hypothyroidism
            Lasix, Pottasium- for edema
            Lipitor- for High Cholesterol
            I coated aspirin
            02 at bedtime


            • #7
              That's wrong. And gross. And just NASTY....ewww.

              Medical "Issues":
              Tachycardia(resting rate is 125-130 )
              Tramadol-as needed (IC)-50mg
              Elmiron 200mg twice a day
              Levsin .125mg 1-2 pills 4 times a day


              • #8
                I can't see how that could possibly happen accidentally. Kind of reminds me of the finger in the chili!

                Stay safe

                Elmiron Eye Disease Information Center -
                Elmiron Eye Disease Fact Sheet (Downloadable) -

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help:


                Diet list:

                AUA Guidelines:

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                Anyone who says something is foolproof hasn't met a determined fool


                • #9
                  Disgusting! Hopefully the manager, and everyone else involved loses their jobs! It seems like it should be considered a health issue. You know like when someone spits on a burger and gets arrested. This was outright horrible! I wonder if they filed a police report, or just went civil.


                  • #10
                    need help with IC

                    my love one has IC and I just wanted to get some more information on this... I really want to understand so I can be more of a support than most.. can some one help me on this.....
                    Last edited by sheila and eddy; 05-13-2007, 03:50 PM.