Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
Just wondering if anyone on the boards here likes Star Wars. On a scale of 1-10 I'm about a 1138. (If you get that, you're even cooler!) Feel free to PM me or come by my Myspace.
Or chatting about it on the boards is nice too!
Kitty!
Just diagnosed w/PFD - Oh Boy!
What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.
What I'm presently on:
Noritriptyline 25 mg
OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
Zanaflex 2 mg at bedtime
Percocet PRN for breakthrough
Zyrtec
Nasonex (allergies)
Jolessa (b.c.)
Physical Therapy 2x weekly
------------------------------------------------------------- I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
LOL, ok, Hubby and I have nicknamed our cat Missy "Darth Kitius", lmao! Yep, I think she's a Sith....
Hugs,
Tracey How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!
*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS Current IC Meds
Vistaril 25mg in the evening Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBS
C-3PO: Just you reconsider playing that message for him! No, I don't think he likes you at all. No, I don't like you either.
Oh ya........Star Wars rules!
I think I've watched the original movie at least 40 times over the years. My ex and I saw it at the theatre 5 times those first few weeks it came out!
Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:
my youngest is a star wars fan! there was a time he wouldm't go out of the house without his lightsaber! the one time i convinced him not to bring it with him to his pepere's house guess who walks by in a parade!!!! none other then darth vader!!!!! no lie!
he watches all of the movies over & over again!
mom to 3 wonderful kids
IC symptoms 7/03,
hysterectomy 11/04,
prolapse cervix 7/07
diagnosed: IC 2007
IBS 2008
Yay! This thread makes me happy. I can't wait to have kids to show them Star Wars.
That Darth Kitius thing is so cute! Dogs are the nice loyal Jedi, but Kitties are just made to be bad, lol. xD
Kitty!
Just diagnosed w/PFD - Oh Boy!
What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.
What I'm presently on:
Noritriptyline 25 mg
OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
Zanaflex 2 mg at bedtime
Percocet PRN for breakthrough
Zyrtec
Nasonex (allergies)
Jolessa (b.c.)
Physical Therapy 2x weekly
LOL!! I agree - kitties are just totally cut out to be Sith, hee hee!!!
We have all the cable channels, HBO, Cinemax etc...and every weekend at least one of the movies is on, be it the first original 3 or the newer 3 - and I will watch one every time, lmao! I want to get the DVD's of all of them - there's a special edition out that has (for the original 3 movies) the actual theater release version, then the "updated & remastered" edition on the same disk! I think it would be so fun to watch the the original theater version! I saw all 3 of the Originals in the theaters - and it's funny - I like them better now as an adult!!! LMAO!!!!!
May the force be with you!!!!
Hugs,
Tracey How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!
*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS Current IC Meds
Vistaril 25mg in the evening Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBS
Comment