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  • #16
    Duchess died this afternoon at around 4pm.

    I've been crying constantly ever since, I don't think my eyes could be any puffier.

    I have a horrible math exam tommorow morning and I just don't know how I'm going to do it

    I miss Duchess so much, I was so excited about seeing her over Spring Break. It just wasn't her time yet.
    current meds:
    cytotec 200mcg twice daily
    toprol
    allegra

    ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

    dx: hashimoto's thyroiditis 1998
    dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
    dx: endometriosis 2003
    dx: innapropriate sinus tacchicardia 2005

    meds tried but failed:
    elavil (6months)- severe tachycardia
    elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
    a bunch of others



    Me and my best friend's baby (also my Godson!)

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    • #17
      Oh no, I'm soooo sorry
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment


      • #18
        oh god i am so sorry,my dog is as loved as my children.i can't imagine what you are going through right now.just try to think of all the good memories with your doggie.i wish there was more i could do or say.keep your head up.

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        • #19
          I know it is hard when they go.

          Comment


          • #20
            I am thinking about you. Pets are family. We aren't allowed cats where we live (yet we can have my dog...okaaaaaaaay), so my kitties are with my parents. My cat Peaches died 9.11.05, away from me and I was crushed. The best thing to do is keep PHOTOS around and make a list of all the funny things your pet has done - and all the nicknames he had. It helps keep good memories alive. Also, make a page on catster.com or dogster.com for them...

            Take care,
            Tracy
            (Added by ICNMgrJill on 5/19/08. I am sad to share that Verdicries (aka Tracy) lost her life in a tragic accident just a few days ago. We will miss her support, her encouragement, her sense of humor and, of course, the joy that she found as a mother and wife).

            Tracy ~ 29 years old with Toxoplasmosis (from birth), Fibro/CFS (since age 13...ouch), severe IC, IBS-D, severe PFD (surgery made it even worse), vulvodynia, hiatal hernia, GERD, ulcers, severe gastritis, numbness/tingling in extremeties, pelvic nerve damage--mainly urethral, urinary retention, pelvic reconstruction 7.10.07 (fixed rectocele, rectal prolapse, lifted bladder, urethra, uterus, and repaired vaginal walls), Raynaud's, 2 severely herniated discs in neck and one in low back, anemia, PCOS, anxiety/depression/panic attacks (since forever). Still having major bowel problems (inability to empty rectum...any ideas?? ).

            I'd like to be on House, MD as a medical mystery.

            Married to Craig, a saint amongst men...who puts up with me and my eccentricities...

            Connor & Mommy by the tree:


            Connor with Santa...so happy!


            I take: LIQUID Atarax, Flomax, Soma (yet again), acidophilus, Glucosamine/Chondroitin with MSM & collagen, d-mannose. MAJOR flare from Cystoprotek! Re-trying freeze dried aloe vera w/some decent results!

            Tried and failed: Elavil, Ultram, Prosed DS, Benadryl, Bentyl, Valium, Ativan, Zanaflex, Librax, Sanctura (all caused retention among other things), bladder instills (owwwwww!), Elmiron (allergic-throat tightening). Failed Interstim-no feeling in sacral nerves...

            I'm allergic to penicillan, sulfa, reglan, quinolones, clindamycin, and now LATEX!

            Comment


            • #21
              Oh, I am SO sorry, saucasa. It's awful that it happened at all, but especially during a time when you were away from her. Are you able to do any kind of special memorialization for her when you are home over Spring Break? I hope so.
              Kim

              Diagnosed August 2001

              Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


              Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

              I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

              *****************************

              “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

              “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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              • #22
                I am so sorry about your dog. We have many pets and they are special members of our family. It kills me that you have lost your beloved dog. My prayers are with you. I pray that God will comfort your broken heart.

                Hugs,
                Amy

                Comment


                • #23
                  Well, we are having a private cremation for her this week and they did her paw print in clay with her nicknames on it....

                  We're going to scatter her ashes when my mom gets back from South Africa, having her urn sit on a table for the next 30yrs just doesn't seem right....

                  Thanks for all the kind words. I'm doing better but I think I'm just in the denial phase, she really doesn't seem gone because all her toys are around the house still and on our front porch is a sign "a spoiled rotten chinese crested lives here" etc... I really miss her at night time when I expect her to just crawl into my arms or when I'm eating something and expect her wet little nose to be sniffing at my ankles or for her to be jumping up to see what's going on...
                  current meds:
                  cytotec 200mcg twice daily
                  toprol
                  allegra

                  ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible

                  dx: hashimoto's thyroiditis 1998
                  dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
                  dx: endometriosis 2003
                  dx: innapropriate sinus tacchicardia 2005

                  meds tried but failed:
                  elavil (6months)- severe tachycardia
                  elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
                  a bunch of others



                  Me and my best friend's baby (also my Godson!)

                  Comment


                  • #24
                    I am so sorry!
                    Cali

                    Comment

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