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This was sent to me by a very prominent IC female urologist! It's gorgeous!
http://www.youtube.com/watch?v=nUDIoN-_Hxs
http://www.youtube.com/watch?v=nUDIoN-_Hxs
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Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/
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Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.
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Oh that's lovely, thank you! -
So Beautiful!Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.Comment
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Thank you, Jill for posting this. I could watch it over and over again. It is so beautiful.Sharon
Shopping??? Did someone mention shopping? I'll get my hat... ;-)
Where I can be found most days.
Link to the ICN Patient Handbook:
http://www.ic-network.com/handbook/
Link to the IC Diet:
http://www.ic-network.com/diet/
IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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That was beautiful. I loved the music. I am very partial to cello and Bach as well!
Thanks for sharing!Rachel
DX's:
IC; PFD; possible Fibromyalgia; IBS;
Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain
I've Tried:
three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
Currently using:
Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!
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Amazing! I can't wait to share it with my girls.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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very cool!Comment
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Thanks that was awesome!Current diagnosis
Severe IC, Severe Endometriosis(keeps growing back all over despite surgeries and treatment), Chronic ovarian cysts, Chronic Pelvic Pain Syndrome,Fibromyalgia,Inguinal hernia, bursititis of the hip, Migraines, IBS, Celiac disease, CROHN'S Disease, Chronic Constipation, Chronic anal fissures, Vulvodynia, Pelvic Floor Dysfunction, Pirisformis muscle spasms,vulvar vestibulitis, chronic insomnia, Burning Mouth Syndrome, Brain TUMOR, Chronic Lyme Disease,Temporomandibular Joint Disorder,Degenerative disc disease,Arthritis.
Allergies: Elmiron, Levaquin, Sulfa-Anaphylactic shock,Morphine, Doxyclycline,Cipro
Treatments I have tried:Bladder instillations, Oral meds-Elmiron, Elavil (amitryptyline), Hydroxyzine (Vistaril & Atarax), Ditropan, Levsin, Urispas, Urised, Pyridium, Cystoprotek, Desert HarvestAloe,antibiotics,Ultram,Neurontin,Valium,Tramadol,Lunesta,Ketor olac,Cipro,Meloxicam,Dilaudid,Morphine,Vicoden,Darvocet,oxycontin,Lyri ca,Cymbalta,Nortriptyline,Enblex,Baclofen,Clonidine,oxybutynin,Detrol, Nitroglycerine ,Vesicare,Sanctura(there are more but this is enough
)
Physcial Therapy, Cystoscopy with Hydrodistentions, Numerous Nerve Blocks, Neuromodulation-including Sacral neuromodulation(Interstim) and post-tibial nerve stimulation (Urgent PC-12week), Botox, bladder instills, physical therapy, natural(herbs)Current meds: Long list..just email if you are interested
Interstim implants--8 plus surgeries for them.
I am selling IC awareness bracelets, keychains, pens and pins..if interested please email me! ThanksFeel free to email me at [email protected].
One day at a time
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That's beautiful. Thanx for sharing.TexasHoney
Let's keep praying for a cure.
IC Symptoms began in early 2001
Divorced : Sept 2002 (Partly due to IC)
Diagnosed with IC in April 2004
Most recent injury - Rupurtured Left Achilles Tendon
Wed Jan 28 2009 (Ice Storm Accident)
2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
Other Injuries
Broken Left Ankle - July 2004 ( fell off ladder)
Broken Left Ankle (Again) - May 2005 (car accident)
Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)
CURRENT MEDS
Elmiron, PyridiumComment
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Amazing to watch!
Beautiful Artwork, Thanks so much.Comment
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Wow! That Was Amazing!Missy
This is me and my hubby, Justin
This is my son Micah, my niece Quin and the Twins!
And of course my daughter Ava!Comment
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Breathtaking to watch!
hugs Sandra
"Never Give Up."
To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/
My Photobucket Link:
http://s237.photobucket.com/albums/f...ramack_photos/Comment
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Okay, this video I'm about to link yous up to is somewhat similar, but it's of dogs. So, if you like dogs, animals or just want to see something really adorable, this is it. Also, the music piece is wonderful.
http://video.yahoo.com/video/play?vid=912004&cache=1
VampirenessLast edited by Vampireness; 09-25-2007, 04:52 AM.Comment
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very cool
"Never Give Up."
To view pictures of my creative interests and Maine Coon kittens click here: http://www.flickr.com/photos/[email protected]/
My Photobucket Link:
http://s237.photobucket.com/albums/f...ramack_photos/Comment
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Hehe, I thought so too
You have kittens, I see, I'm going to check out their pictures.
VampirenessComment
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