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Patient Stories


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Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 6 Posts: 77
6 77
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,659 Posts: 46,180
6,659 46,180
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 22 Posts: 98
22 98
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,172 Posts: 56,980
7,172 56,980
Share your Interstitial Cystitis Success Story Here
Topics: 1,178 Posts: 12,747
1,178 12,747
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 23 Posts: 113
23 113
Are you a newly diagnosed man? Meet others here!
Topics: 466 Posts: 3,473
466 3,473
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 414 Posts: 5,040
414 5,040