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Patient Stories


Forums Topics Posts Last Post
Chronic Infection - Fungal/Bacterial
There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 9 Posts: 105
9 105
ICN Member
by PJoy
Elmiron / Eye Discussions
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 28 Posts: 280
28 280
ICN Member
by philip77
Introduce yourself and share your story
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,781 Posts: 46,594
6,781 46,594
Pain Care Challenges (Share Your Story!)
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 53 Posts: 291
Last Post: 8 Month IC Flare
53 291
Barbara M
Barbara M
ICN Member
by Barbara M
Newly Diagnosed With Interstitial Cystitis
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,184 Posts: 56,662
7,184 56,662
IC Success Stories
Share your Interstitial Cystitis Success Story Here
Topics: 1,203 Posts: 12,858
Last Post: Paquenil for IC
1,203 12,858
ICN Member
by purpleviolet
IC Veterans (5+ years living with IC)
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 38 Posts: 199
38 199
Men with Interstitial Cystitis
Are you a newly diagnosed man? Meet others here!
Topics: 483 Posts: 3,541
Last Post: Aloe Vera
483 3,541
ICN Staff
by ICNDonna
My Interstitial Cystitis Is In Remission!
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 418 Posts: 5,030
418 5,030
ICN Member
by AnnieBel