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Patient Stories


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There is considerable debate and discussion about the role of chronic infection in IC. Whether you are a fan of Dr. Fuzzy or Dr. Malone-Lee, please feel free to share your story here.
Topics: 1 Posts: 3
1 3
Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 8 Posts: 114
8 114
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,687 Posts: 46,103
6,687 46,103
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 31 Posts: 156
31 156
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,174 Posts: 56,606
7,174 56,606
Share your Interstitial Cystitis Success Story Here
Topics: 1,188 Posts: 12,763
1,188 12,763
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 25 Posts: 121
25 121
Are you a newly diagnosed man? Meet others here!
Topics: 469 Posts: 3,468
469 3,468
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 415 Posts: 5,016
415 5,016