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Patient Stories


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Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 5 Posts: 64
5 64
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,647 Posts: 46,114
6,647 46,114
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 16 Posts: 74
16 74
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,169 Posts: 56,958
7,169 56,958
Share your Interstitial Cystitis Success Story Here
Topics: 1,176 Posts: 12,727
1,176 12,727
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 17 Posts: 91
17 91
Are you a newly diagnosed man? Meet others here!
Topics: 464 Posts: 3,470
464 3,470
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 414 Posts: 5,034
414 5,034