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Patient Stories


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Researchers at the Emory Eye Center have discovered maculopathy in SOME patients with IC who have taken Elmiron for long periods of time. Share your story here.
Topics: 8 Posts: 99
8 99
Share Your Interstitial Cystitis Story Here. When did it start for you? How did it begin?? What interstitial cystitis treatments worked for you?
Topics: 6,671 Posts: 46,246
6,671 46,246
With pain care now greatly limited, we're collecting stories from patients who are struggling to find pain care and/or who are treated with disrespect. Please tell us your story!
Topics: 27 Posts: 129
27 129
Introduce Yourself and share your interstitial cystitis story here!
Topics: 7,174 Posts: 57,000
7,174 57,000
Share your Interstitial Cystitis Success Story Here
Topics: 1,182 Posts: 12,779
1,182 12,779
This forum is for patients who have been living with IC for more than five years, who have wisdom to share but who also need support and encouragement
Topics: 24 Posts: 117
24 117
Are you a newly diagnosed man? Meet others here!
Topics: 469 Posts: 3,488
469 3,488
Yes, remission happens and happens often for interstitial cystitis patients. If you're in remission, please share your story and success tips here!
Topics: 415 Posts: 5,047
415 5,047