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Could IC be caused by Chronic Infection?

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  • #46
    I read this quickly, but I saw your mother is prone to kidney stones which can be caused by oxalate issues. Something to check into as some people claim oxalates can cause IC if one's body does not deal with it. You can have a 24 hour urine oxalate levels test or you can have your microbiome tested by companies that do that sort of thing and report on whether your microbiome is degrading it or you can try a low oxalate diet. Some things to mull over if you haven't. Here I am giving advice and I never really figured it out for myself.
    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.


    • #47
      Originally posted by Christina Perry View Post
      I am currently on Dr, Malone's treatment plan and I travelled from Canada to be seen at his clinic. I was diagnosed with an embedded infection. During my third week of treatment I had to go to the ER as I developed a very bad UTI the doctor felt spread to my kidneys. I am now on an a different anti biotic for 4 more days. I have had every treatment and medication that is available as well as homeopathic treatments and nothing helped me. I had a hydrodistention, bladder intstills for six months and had the Neurostim implanted in my back. It was a very painful recovery and has done nothing for me. I went to England out of desperation as in Canada this condition we have is not taken seriously. I have a close friend whose daughter took her own life because of it. I am hoping this treatment can help me as I have nowhere else to turn now. I have a very good diet, I do not drink coffee or alcohol and I do not eat junk food. I am a vegan and do not consume any animals products. If anyone has had any success with this treatment, please let me know. Thank you all for listening.
      This doctor has been suspended by the British National Health Service. He treats people with first-generation antibiotics for months and years (!), basing his therapy just on leucocytes found in the urine samples....I find that quite frightening.


      • #48
        Thank you for sharing this information.

        Warm hugs,

        P.S. to the IC Network.
        Stay safe

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        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Anyone who says something is foolproof hasn't met a determined fool


        • #49
          Thanks Donna for the welcome.


          • #50
            About six years ago, I took my adult daughter who has IC to Dr Bundrick in Bossier City / Shreveport. He explained the concept of an imbedded infection. Six months of antibiotics, especially Levaquin, only gave her bad side effects and likely worsened her bowel problems.


            • #51
              I am just about to finish a six month antibiotic treatment for an infection that just wouldn't clear. I've had 3 yeast infections during this treatment....and am ending it with a very painful one at the moment. I'm so depressed! So much pain and never find an answer. I say 6 months but actually it has been a year because they kept trying different antibiotics and none of them hence the six month treatment with a half dose antibiotic. I can almost guarantee as soon as I stop it in a few days I will have another infection come back.