Announcement

Collapse
No announcement yet.

4 UTIs since end of May 2020

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    oh yeah i have standing orders at home for culture, The Drs. office actually called me and told me they sent over some kind of one dose powder antibiotic I forgot what it is called . . .starts with an F I have never taken it before. Hopefully it will do the trick it won't be in until tomorrow. If bacteria wrong when culture is done, they will have to think of something else. I don't think it is a flare . . the hard part is now having to wait I would really like to do an instill but not supposed to if it is an active infection. I took 100mg of pyridium and it seems to be helping a little I won't know until I go. Another weird thing is Prydium works IF I have a UTI, if i take it and I don't have a UTI it will make me flare! but only seems like I can take one dose any more and it does flare.
    Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

    Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

    - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
    - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
    - Ativan when needed to relax.
    - Elmiron only took for a couple of days; didn't like it
    - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
    - tramadol worked great for back aches
    - generic claritin D worked best for me for calming bladder down and my panging
    - still taking cysto renew 4x a day and believe this and diet helped the most.
    - took dosage of cysto renew down to 2x a day and still ok

    Comment


    • #17
      I hope the pyridium helped.

      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #18
        Well it did help the first dose and then the next day I took just 1 pill of 100mg and also took one Trimethoprim to see if could get a jump on the infection and was in flared horribly almost all night.
        The next day I stopped taking everything even Bladder ease. Then yesterday I started Bladder Ease and some aloe vera pills and today it feels like I have nothing wrong with me . Anyway Telemed tomorrow with urogyno to discuss UTIs and possibly pickup the Monural/FOSFOMYCIN. I am also looking into MicroGendx. I will take fosfomycin depending of what the culture says again. And if another or chronic UTI comes again will want to try MicroGenDX. On another forum I have gotten some tips regarding Marshmallow root tea for IC upkeep and Monolaurin to help ward off UTIs. As always keeping fingers crossed.

        P.S. do you know how to change the signature down below, thanks
        Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

        Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

        - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
        - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
        - Ativan when needed to relax.
        - Elmiron only took for a couple of days; didn't like it
        - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
        - tramadol worked great for back aches
        - generic claritin D worked best for me for calming bladder down and my panging
        - still taking cysto renew 4x a day and believe this and diet helped the most.
        - took dosage of cysto renew down to 2x a day and still ok

        Comment


        • #19
          I'm glad you are feeling better.


          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #20



            There isn't anything controversial here about PFD --- we suggest being evaluated for PFD (pelvic floor dysfunction) by a physical therapist. PFD can be a significant part of IC pain in some IC patients. If anyone is looking for a physical therapist, if you scroll to the top of this page and click on the link to the front page, you will find a link to find specialists, which includes physical therapists.

            I'm glad you are doing well --- thank you for sharing.

            Donna
            Last edited by ICNDonna; 03-25-2021, 07:09 AM.

            Comment


            • #21
              Did I miss something here? I received this answer in my email and brought me to this thread I was going to finish reading it but it is gone . ..I have an appt with PT for PFD on April 20. The FOSFOMYCIN seemed to work for the UTI . . . . and wanted to hear about the Hiprex because I might want to start taking it again and have been reading about the wand, thank you.


              HI there... I had very successful results with hiprex. one year of agony and trying every treatment and medicine under the sun and then was fine in two weeks - combining with pelvic massage with a pelva wand. I was warned by Dr Malone that it might sting a bit at first, and it did. nothing terrible and then
              Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

              Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

              - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
              - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
              - Ativan when needed to relax.
              - Elmiron only took for a couple of days; didn't like it
              - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
              - tramadol worked great for back aches
              - generic claritin D worked best for me for calming bladder down and my panging
              - still taking cysto renew 4x a day and believe this and diet helped the most.
              - took dosage of cysto renew down to 2x a day and still ok

              Comment

              Working...
              X