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New Elmiron Eye Disease Resource Center

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  • New Elmiron Eye Disease Resource Center

    Hi Everyone. I was asked to put together a simple information center for patients who are learning about pigmentary maculopathy and Elmiron. We will be putting all updates there AND on our downloadable fact sheet that you can print out and give to your doctors. Here are the links:

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    We always release updates on this issue in our free newsletter that goes out every month or two. Sign up here! -

    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

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    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.

  • #2
    Thank you for the information! 😀


    • #3
      Are there any treatments for the eye damage yet other than the shots to treat fluid if you get fluid in eye along with the pigmentary maculopathy? My damage and vision issues continue to progress after being off it for 2 years.