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ELMIRON AND beyond

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  • ELMIRON AND beyond

    I took Elmiron for over 20 ;years. I have terrible eye sight. I have macular degeneration along with blurred vision, can't read without glasses. Can not see anything up close without glasses. Have real problems with low lights. I have glasses for long distance. My eyes are really bad and it is will bothering. I have considered a law suit against the Elmiron manufactures but don't know if it is worth all the pain.

    Along with the eye problems because I am off the Elmiron I am back to constant urine incontinence. I am in the bathroom at lease every couple hours day and night. I go through at least 5 pads a day due to accidents. My doc says we can try a bladder dilation but isn't sure that will help.

    I Am going CRAZY!!!!!
    esophagus spasams
    dyastalic disfuntion with stiffness of right heart valve
    lymphedema of left leg and ankle
    venous insufficensy
    hypothyrodisim
    IC
    Pelvic Floor Disorder-having pelvic Physical Therapy
    breast cancer 5 yrs remission
    GERD
    colitis
    swollowing difficulties have throat stretched
    Asthma
    Anemia
    Lots of medications more than 20 rx's
    Lots of doctors

  • #2
    I'm so sorry you are among those with eye problems --- that has to be extremely difficult to handle. Is your doctor talking about hydrodistention sometimes called over-distention? Some ICers are helped by this --- I'm in that group --- I don't know if it would help with incontinence, but it might be worth a try. I wish I could be of real help.

    Sending gentle hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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