No announcement yet.

First cases going to trial in September

  • Filter
  • Time
  • Show
Clear All
new posts

  • First cases going to trial in September

    Apparently the first few lawsuits are going to trial this fall and we are hoping for the best. Now the bad news. Never would I have thought that I would see my name, and the ICN, on a federal subpoena but earlier this Spring that happened. The attorneys for the manufacturer requested a massive amount of information... everything that we had written about pigmentary maculopathy, all of our messaging about this, articles in our magazines, data from our survey, communications with the FDA etc. etc. I gave them everything that I had knowing that I am absolutely proud of the role that I played in sharing this information with patients and developing data that was given to the FDA in support of a warning. Dr. Phil Hanno, former Chair of the AUA committee for IC/BPS, shared that our study was excellent work.

    You see, I believe in informed consent. It's very important for patients to understand the potential risks AND benefits of therapies that they are considering. I could not sit on the information. You had the right to know about this. Sadly, I had to hire my own attorney and have had to pay out about $20K so far for this with no hope for compensation. I am NOT a party to the lawsuit. There will be no chance for me to recover my attorneys fees. So, if you think that the work we did was important, please consider making a donation to the ICN.

    Let's hope for a swift and encouraging outcome.

    Jill O.
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

    Looking for books, magazines & reports on IC? Please visit the ICN Shop at: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

    Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.

  • #2
    THANK YOU for all you do!!!