No announcement yet.

I have beaten IC...for now

This topic is closed.
  • Filter
  • Time
  • Show
Clear All
new posts

  • going to try it

    definalty going to try the msm/gluc and quentirne thingy. im very much into alternatiave treatment and doctors quite frankly scare me.

    im going to get both my chriro and natural healer to test me for the products to see if i will be ok on them and if they are helpful.........

    im having a major flare at the moment cant pinpoint it........i have never felt this bad as usally i have it farely also experincing stabbing pains in the girly region and really sore nerve/muscle pain down back of legs and bottom weird...........

    at the moment experiencing
    pain in bladder and spasms
    buring on outside when urinatiog
    man sleep would be good............oh to sleep

    prob under two much stress at moment as well.....we are currently going throu social worker interviews to get our name put onto the adoption list for a 36 and so want a baby,,,,,,,,,,,,but want health more!!!!!!!!!
    does IC go away if you get preggie? i have completly wacky periods and the thought of being preggie with this horribel thing along with vuvodina feeling and stomach issues si what leads me to adoption!!!!!!!!!!!!!!! thou we have tred to get preggie but no can do...

    I got my IC after i was 17 when i was suffering from anerexia leading me to belive immune problem, as of course i was not a healthy chick and lived on coffee and diet coke!!!!!!! not good for the bladder........

    i wonder if the combo will also help with vulodynia as well......i have read msm is great for fibro as well


    • Trying2Cope --

      I'm not sure if this has been asked already, but what were your chief symptoms? I'm very happy that you found something that worked for you and that others are able to benefit from your experience... Just got officially diagnosed myself, and these stories give me so much needed hope.


      • just wondering

        I have not read all the previous posts, so don't know if already covered. But, have you tried to stop taking everything and see if you flare, then take the MSM/gluc only, to see if that is actually what helped you?


        • Dear jsruby - In my experience, gluc w/msm is what is making the difference; I know that now because I was on it religiously for about 3 months and my flares/symtpoms were GONE. Then, I got lazy about taking it for a few weeks (because I felt perfectly fine), and the pressure & discomfort started back again - I was basically back to square one. (it is criticial to note that I was still taking my Elavil, Elmiron, and Atarax religously during this time!) So I am pretty much realizing that it was indeed the gluc that made the difference. I went back on my gluc 3x a day and within 2 weeks was feeling almost perfectly fine again. (just got back from my high school reunion where I had as many vodka drinks as I wanted. I even ate buffalo wings!) So, a few weeks ago I cut my elmiron from 4 pills a day to 1x a day, and am feeling better than ever. At some point I may drop the whole cocktail and try gluc w/msm alone.


          • Quercitin and/or Glucosimine with MSM


            What brands do you use because I will be running to the store after work!! ANYTHING is worth trying at this point, I am in soooo much distress!

            Symptoms: Urgency, frequency, urethra stinging/burning, pressure, bladder pain.
            Current Medications: Prelief, Pyridium, Loestrin FE 120, Probiotics.
            Unsuccessful Medications: Elmiron, Atarax, Paxil (off since July 07 after 12 years), Oxytrol Patch

            Diagnosed with IC in 2004, also have IBS and Endometriosis.


            • help with Quercetin problem?

              Hi everyone,

              I've been taking Quercetin for about 8 months while and it really, really helped me. But, about two months ago, I noticed that it started making my symptoms worse and that I was getting really, really awful heartburn too.

              I didn't want to stop taking it, though, because it helped so much before. So, I eliminated everything else that could possibly be causing this. And I've tried different brands to avoid different additives, but here I am up at 3am again in terrible pain from heartburn (even though I'm taking prescription medicine for it now and never had to before) and my bladder is really irritated too.

              Has this happened to anyone else? Also, does anyone have any recommendations for what I might do to stop these effects? Is there something I can take with the Quercetin that will buffer it. It was such a godsend before all of this started and I really don't know what I'll do if I can't find a way to take it any more because it took years to figure out that this was something that would help me (I've also tried Cysta-Q and might go back to that, but it really interfered with my cycle, caused some other related problems, and never worked as well as the Quercetin--plus, I'm not sure I can afford it).

              I'd really appreciate any advice that anyone can give me about this.

              Thanks, little bear


              • non acidic Ester C

                Where do I find Non acidic Ester C? I went to GNC and bought their brand GNC Ester-C 500. It doesn't say it anything about non acid. It says: Vit C (as Calcium Ascorbate) Calcium (as Calcium Asorbate) Other Ingredients: Gelatin, Cellulose, Calcium Carbonate. Is that one OK? I haven't tried it yet.

                Originally posted by glassd18 View Post
                I take Glucosamine & Chondroitin by Natural Factors, and Quercetin 500 from GNC. These supplements have helped me immensly. I tried to do the MSM, but did flare when I took it. I am going to try and introduce it again sometime. I also take non acidic Ester C, Evening Primrose Oil, and Fish Oil. I follow the IC diet too, but can now add a few foods back in, but not too much. MSG is the killer of all additives for me. I drink Evian water every day. I am not 100%, but I am a far cry from when this all first started. Congrats to all of you who are having success with the Glucosamine and MSM!!! Wish me luck to try it again!!
                The happiest people don't neccessarily have the best of everything, they just make the best of everything that comes their way!!

                IC: Elmiron, Tofranil, Hydroxyzine, Prosed DS, stool softener
                UC: Asacol


                • HI Jenny 76 - the type of Gluc w/MSM that I've been taking is Walgreens brand. It works great for me. It seems like everybody has a different tolerance for these supplements, though - you may have to try a brand or two to find one your bladder likes (I've seen alot of posts along those lines). I just got lucky the first time out.


                  • Robin, Ester-C is supposed to be a low acid or buffered C. Hope that helps. Good luck to ya.


                    • windwalker, thanks, that will help
                      The happiest people don't neccessarily have the best of everything, they just make the best of everything that comes their way!!

                      IC: Elmiron, Tofranil, Hydroxyzine, Prosed DS, stool softener
                      UC: Asacol


                      • For everyone who is keeping score and thinking of trying the "T2C" method for themselves:

                        I've been away for two weeks helping my sister get her breast cancer research fund-raiser off the ground. (I'm excited about her product and will post it on the appropriate thread when it is ready!) During this time I QUIT the Lexapro and went very strictly on the elimination diet. I'm scared to eat or drink pretty much everything because my bladder is really letting me know that it has not yet forgiven me for the Lexapro debacle.

                        BUT: I started last week back on the glucosamine/MSM, regular old Sam's Club extra-large bottle, and I'm doing well. All of you wonderful people have made me realize that I've had IC for a long time, and I want to keep this bladder functional for an even longer time. So I've upped my Elmiron to the recommended 3x a day, and I'm certainly willing to try something that helps rebuild the lining and stop the inflammation. The hardest part is giving up foods and drinks that do further damage, but the resulting inflammation wipes me out anyway, so it's coming down to a self-defense thing.

                        So: So far, another score for glucosamine/MSM. I'll post here in another few weeks and let everyone know how I'm doing. If I'm still doing this well, I might try the buffered C. God knows it has been 15 years since I've swallowed a vitamin tablet, and I worry about getting enough of those too.

                        Thanks everyone!

                        July Wolfe

                        DIAGNOSES: (All in 1990 or before)
                        All the "Fibro Five": Fibromyalgia, IC
                        (but IBS, Endometriosis and CFS now all dormant).
                        Been on 100 mg. x3 Elmiron off and on for 17 years
                        Tramadol (pain) 50 mg. every 6 hours
                        Skelaxin (muscle relaxer) 800 mg. x2 daily
                        Imipramine (generic for Tofranil) 50 mg.
                        Tapering off Ambien
                        Back on Estrace after 3 years off (thank God!)
                        Am very faithful to Prelief


                        • I am closing this thread because there are now more than 175 posts.

                          Stay safe

                          Elmiron Eye Disease Information Center -
                          Elmiron Eye Disease Fact Sheet (Downloadable) -

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help:


                          Diet list:

                          AUA Guidelines:

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                          Anyone who says something is foolproof hasn't met a determined fool