Pudendal Nerve Fixed - Revised Version

[RAS]

I've had severe burning on my bottom (pernieum), I'm also have back pain --mostly since hernia repair, until a few months ago, I rode my ride ALOT, I've also had piriformis syndrome. Maybe this pudendal nerve should be looked at

for 8 years I thought I had a hemorrhoid that flared, but when I'd feel the area, I said "it doesn't seem to be coming from my anus"...next to it. I've used a mirror and had my unwilling husband look at my bottom and he said nothing. but I'd do sitz baths and they'd go away. I always thought it strange that I'd get hemorrhoids when I didn't get them with either pregnancy in which I gained 45-50 pounds on my normal 115 frame and 9 pound babies.

The uro while doing the hidro yesterday, saw this bump on my bottom and he sent it for biopsy.

ps: I accidentally (he had it shipped to the office and didn't think it'd take only one day to deliver and I went in to see a client.....oops) found out that my husband bought me a sweet bike for Christmas......I hope to ride it some day.

[Aaron]

I have chronic pelvic pain with the usual symptoms, pain, frequency and the feeling of not emptying properly being the main ones. The uro(s) insist on IC and treating me with medication, which none have worked. The new uro wants to do another cystocopy(rigid!) and a possible biopsy. I've already been through all that less than 6 months ago and don't see the outcome being any different.

Zacjupiter I'm local to you and would like to speak with your physio, please see your PMs thank you.

[ouch_a_lot]

Aaron, i can help you out, not sure how often Zac checks his messages. Ill PM you.

[painsad]

Re: Pudendal Nerve Fixed - Revised Version

Hi all,
I am having symptoms almost identical to what I am reading in the threads here. Dull achy pain between my rectum and scrotum. this all came about a little over 15 months ago. I have seen my primary physician which went no where which led me to see a urologist. after having seen the urologist last year, he diagnosed me with levator ani syndrome. here I am a year plus later with the same dull pain that only comes on strong when sitting. if sitting on the toilet, non existent. standing, sleeping or working, no pain. only sitting. I went back to my urologist recently and this time around was scheduled for a cystoscopy that is upcoming in several days. based on the reasoning for the cystoscopy, I feel it is a bit hasty and drastic. wouldn't an MRI and ultrasound maybe make more sense to do first is one of the constant questions I keep on coming up with. if anyone can shed some light here to help me in which path to head down, that would be great! I am terrified of the procedure and really feel like it should be a last resort. or, am I completely wrong and maybe this is the first step? I used to ride my mountain bike for many hours weekly 3 months before the initial ache began. that's the only trauma I can relate if it can even be called trauma. I really am debating canceling the procedure and just dealing with the pain. any input would be extremely helpful. thx!

[ICNDonna]

Re: Pudendal Nerve Fixed - Revised Version

Hi all,
I am having symptoms almost identical to what I am reading in the threads here. Dull achy pain between my rectum and scrotum. this all came about a little over 15 months ago. I have seen my primary physician which went no where which led me to see a urologist. after having seen the urologist last year, he diagnosed me with levator ani syndrome. here I am a year plus later with the same dull pain that only comes on strong when sitting. if sitting on the toilet, non existent. standing, sleeping or working, no pain. only sitting. I went back to my urologist recently and this time around was scheduled for a cystoscopy that is upcoming in several days. based on the reasoning for the cystoscopy, I feel it is a bit hasty and drastic. wouldn't an MRI and ultrasound maybe make more sense to do first is one of the constant questions I keep on coming up with. if anyone can shed some light here to help me in which path to head down, that would be great! I am terrified of the procedure and really feel like it should be a last resort. or, am I completely wrong and maybe this is the first step? I used to ride my mountain bike for many hours weekly 3 months before the initial ache began. that's the only trauma I can relate if it can even be called trauma. I really am debating canceling the procedure and just dealing with the pain. any input would be extremely helpful. thx!

to the IC Network. I'm glad you found us.

I noticed that your post was a response to a very old thread (2008) --- I suggest you start a new thread to ask your question.

Sending healing thoughts,
Donna

[gma11]

Re: Pudendal Nerve Fixed - Revised Version

Obviously I broke some IC site rules as my previous message was removed. This is a revised version without any references to the physiotherapist that helped me.

I believe it is time for me to share my experience and, I hope, a lasting success.
I was never officially diagnosed with Interstitial Cystitis, however I had a number of typical symptoms like irritation, urgency, frequency and sensitivity to acidic foods. My doctors could not establish an alternative diagnosis and IC was suspected based on a cystoscopy.

About 4 months ago I started taking Cystoprotek and my symptoms improved, however the improvement levelled off after about 2 months. Then, by accident, I heard about a man with very similar symptoms, who was treated successfully by a physiotherapist for Pudendal Nerve Damage.
At first, while researching on the internet, I couldn’t clearly recognise my symptoms as they typically talk about pelvic pain. However, after some further reaserch this diagnosis looked more plausible.
I suffered the same symptoms about 3 years ago, which cleared after a course of antibiotics. I have to add that no bacteria could be found at any time. I started suffering the same symptoms about 8 months ago. I tried to find some common cause that could have triggered the onsets of symptoms both times. In between these two events I had hernia surgery and open heard surgery, but no surgery before the first event.
One of the possible ways to damage the Pudendal nerve, according to some sources, is to ride a bike. I usually don’t ride bikes but I remembered that I hired a bike for a day about 3 years ago, and about 9 months ago I started going to a gym and rode an exercise bike there. After checking these dates and finding a good correlation, I decided to start the physio treatment.

After approximately 5 weeks of treatment my symptoms improved significantly, with at least half of the days being symptom free. When I do get symptoms, they are less pronounced and do not last as long as they used to.

I am incredibly lucky as this physio works where I live - in Brisbane, Australia. He seems to be very successful in treating people with similar (usually much stronger) symptoms. He cooperates with the local urologists and some international bodies involved in Pudendal Nerve treatment. He told me that he followed the treatment of a group of 40 patients and 37 of those 40 were completely free of symptoms after his treatment.
The treatment consists of lower back manipulation and a set of exercises that are designed to loosen and strengthen the pelvic bone – spine connection. The lower back manipulation is similar to chiropractic treatments.

I believe that many people who were diagnosed with non bacterial Prostatitis or Interstitial Cystitis, could be suffering from Pudendal Nerve Damage. In my case, I suspect that the initial irritation came from the nerve damage, which further resulted in the bladder irritation.

What therapy did they use for Pudendal Nerve, was it injections or physical therapy. What exactly did they do?