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  • #1

    Finally somewhat under control

    Hi,

    I finally (for the moment) have IC under control. I don't know if you would count a couple good days as "under control," but I would given that since January, I have had NO RELIEF from symptoms.

    Anyway, yesterday, I had my last nerve block/epidural with trigger point injections and I can already tell that it's working well. I have had pelvic pain and pain that made sleeping impossible. I came home after my procedure yesterday and slept about four hours. I think I would have slept all night if my husband hadn't came in to check on me and then I wanted to get up and spend some time with him.

    Also, I have bladder instillations of heparin and lidocaine to do at home. My wonderful husband helps me and we have done two so far. They really seem to be working well.

    My pain specialist added some valium for spasms and it makes things SO much easier.

    So, I am looking forward (hopefully) to trying to travel up to see my in-laws (a 5 hour drive) soon. Maybe we'll take that in steps and go see my family (about 70 miles away) and see how I tolerate the drive.

    Anyway, I just want to thank everyone here because during my worst days, I have had someone to talk to. I plan on continuing to be on this site every day or so because there are such special people here and such good information when we all share our experiences.

    I guess this is the essence of a support group. This is an excellent one!

    God Bless,
    April
    Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.
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  • #2
    Oh April I am glad you have got some relief, you really needed that break.. I hope you continue to go foward with your treatment..God Bless You!!!
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      My husband always comments that it does feel so good when it stops hurting. He is sooooo right. I'm glad you're feeling better; I know you've had a really tough time.

      Huuuuugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        Thanks guys for being there. I was wondering if anyone had ordered the Interstitial Cystitis Association's personalized disability packet and if you had trouble getting it sent to you. They have debited our checking account around 2/10 and I have not gotten it yet. I tried calling today and no one answered so I left a message and emailed them.

        Anyway, this site is way more fast at responding when you order something. I appreciate the promptness of ICN.

        April
        Diagnosed in 2007, but had IC symptoms since 2002. My current regimen includes: home instillations of Marcaine, Heparin and Solu-Medrol plus vaginal valium suppositories nightly. I also use Tramadol for pain as needed.

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