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  • aprilchen
    replied
    Thanks guys for being there. I was wondering if anyone had ordered the Interstitial Cystitis Association's personalized disability packet and if you had trouble getting it sent to you. They have debited our checking account around 2/10 and I have not gotten it yet. I tried calling today and no one answered so I left a message and emailed them.

    Anyway, this site is way more fast at responding when you order something. I appreciate the promptness of ICN.

    April

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  • ICNDonna
    replied
    My husband always comments that it does feel so good when it stops hurting. He is sooooo right. I'm glad you're feeling better; I know you've had a really tough time.

    Huuuuugs,
    Donna

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  • leelee88
    replied
    Oh April I am glad you have got some relief, you really needed that break.. I hope you continue to go foward with your treatment..God Bless You!!!

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  • aprilchen
    started a topic Finally somewhat under control

    Finally somewhat under control

    Hi,

    I finally (for the moment) have IC under control. I don't know if you would count a couple good days as "under control," but I would given that since January, I have had NO RELIEF from symptoms.

    Anyway, yesterday, I had my last nerve block/epidural with trigger point injections and I can already tell that it's working well. I have had pelvic pain and pain that made sleeping impossible. I came home after my procedure yesterday and slept about four hours. I think I would have slept all night if my husband hadn't came in to check on me and then I wanted to get up and spend some time with him.

    Also, I have bladder instillations of heparin and lidocaine to do at home. My wonderful husband helps me and we have done two so far. They really seem to be working well.

    My pain specialist added some valium for spasms and it makes things SO much easier.

    So, I am looking forward (hopefully) to trying to travel up to see my in-laws (a 5 hour drive) soon. Maybe we'll take that in steps and go see my family (about 70 miles away) and see how I tolerate the drive.

    Anyway, I just want to thank everyone here because during my worst days, I have had someone to talk to. I plan on continuing to be on this site every day or so because there are such special people here and such good information when we all share our experiences.

    I guess this is the essence of a support group. This is an excellent one!

    God Bless,
    April
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