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  • Best thing to treat frequency/spasms

    I've read alot of the success stories & I'm glad to know something has worked for some of us. And will do more research on the Glucosamine MSM & Quercetin alot of people have had success with.

    But I was wondering if anyone has had success treating the frequency/spasm feeling. You see I don't get alot of pain issues w/my urinary problem. I get an "irritated" feeling in the urethra, but I wouldn't call it pain. Just like...it feels as though somethings up in there, kinda. Hard to explain, anyway I do get alot of spasms and frequency that I take lorazepam for. But I don't want to be on that forever!! Also the dr thinks my "irritated" feeling in the urethra is from spasms. I don't know, I just want it to go away.

    Thanks!
    Dona

  • #2
    I take urised for spasms. there are many med combs that can help to control your symptoms. Elmiron, hydroxizine, elavil.. those are what I can think of at the moment.
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #3
      I find that magnesium oxide pills work well when I am spasming. Apparently, Magnesium is a natural muscle relaxer. I swear by the stuff!
      Blessings and Hope

      Current Meds.
      OFF MY MEDS
      Vivelle Dot: .10 changed every 72 hours
      Compoounded Progesterone 25mg/night

      Current Supplements
      Hydroeye: 2 pills AM

      Diagnosed
      1995: Endometriosis
      1998: Interstitial Cystitis
      2006: Bladder Endometriosis, Total Hysterectomy and Bowel Re-Section
      2008: Removal of Ovarian Remnant and Endometrial Cyst That was Obstructing Ureter
      2012: Laparoscopic Removal of Adhesions and Staples

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      • #4
        I prefer hyoscyamine for spasms.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          What is hyoscyamine? Thanks!

          Dona

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          • #6
            I get spasms at night & take 5mg Ditropan for them & it works ok for me. I also take Elavil at night, so not sure which one is most responsible for the relief?!!
            Kadi

            -------------------------------------------------------------
            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            ------------------------------------------------------


            New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
            Source - Pinterest
            "


            Current treatments:
            -IC diet
            -Elavil 50mg at night
            -Continuous use birth control pills (4-5 periods/year)
            -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
            -Pyridium if needed,
            -Pain medicine at bedtime daily, as needed during the day several times per week
            -Antibiotic when doing an instillation to prevent UTI
            -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
            -Dye Free Benadryl 50 mg at bedtime
            -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
            -Managing stress= VERY important!
            -Fur therapy: Hugging the cat!

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            • #7
              how many mgs do u take? im assuming its IC safe.

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              • #8
                I take Vesticare 5mg - at night. Use to take Hyoscyamine (0.125mg) up to 3 times a day), really didn't do too much for me.

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                • #9
                  The spasms and frequency were my main issue too. I never had a lot of pain except when I ate a "bad" food. I take Elmiron and Elavil and watch my diet. My frequency is down so much-I can wait sometimes up to 4hrs!!!!(Used to be an hour max) and the spasms are a lot easier to deal with. It used to be horrible and there was no stopping them, but now I can relax myself and make them go away with in 20mins or so.

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                  • #10
                    Rescue instillations take care of all of my symptoms (listed in my signature). Because it has lidocaine it takes care of my backward UTI pain.
                    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
                    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

                    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
                    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
                    I post to encourage and offer total support for rescue instillations.
                    Find me on facebook: L. Clark Thomas
                    Louann

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                    • #11
                      I've been on Ditropan for a couple of months and it hasn't helped my urethra at all. I was recently put on an antibiotic and pyridium for 30 days to see if that makes a difference. Week one down... no improvement
                      [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                      [

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                      • #12
                        Calcium lactate got rid of my urethral spasms. I take three, three times/day. I get the NOW brand. At least I eliminated one problem.
                        Last edited by ICNDonna; 04-09-2007, 03:24 AM. Reason: Advertising site
                        Dianne

                        My bellydance "sisters" , our dogs, and me.

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                        • #13
                          Hyoscyamine is a prescription smooth muscle antispasmodic.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment


                          • #14
                            My urologist wants me to do rescue instillations at home every day. I'm worried about that......I have mild IC, and right now, I'm taking an antibiotic because I had him do a urine culture against his better judgement--he said I didn't have a UTI because I had a "history" of negative cultures--sure enough, I do have a UTI!!! I knew it. The symptoms were bad. I think diet and stress are my big problems. I'm trying the elimination diet and I found out that oranges are a culprit--I'm hoping choc. isn't!!! So, here's my question of the day. Is there a cure? What are the "treatments" supposed to do? Just eliminate symptoms, but not stop the progression??? Does it progress? Is the heprin supposed to "relign" the bladder, so it's cured??? Why am I going to do rescue instillations? At home....every day.
                            I will be 64 on April 15th. Disagnosed in January 2007, but must have had it for quite a while. Bladder capacity while sleeping is 700 cc. I also have Fibromyalgia, IBS with fissures at times, which are painful. I take Flexeril 10mg at bedtime; Diovan for blood pressure; Levoxyl for thyroid. I have agreed to do "rescue instillations," but haven't started them yet.
                            Nancy

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                            • #15
                              Maybe someone else can answer your questions... I'm new to all this (and undiagnosed). From my understanding, there is no cure. You can go into remission. Triggers vary for people. That's about all I know!
                              [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                              [

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