Please bear with me while I ramble a little.
I seem to be one of the very lucky ones that seem to be feeling better all the time. I guess I am in remission. The last symptom I had (urinary retention) seems to be going away since I started on Crestor (for high cholesterol - strange, I know!)
It's funny how when you get better you start forgetting to some extent just how bad the pain was before. I think it must be like childbirth. My sister said even though the labor was horrible, the memory of that pain fades away with time. I still have flashbacks occasionally of the most horrendous pain imaginable but I can quickly put it out of my mind. The point I'm trying to make is that now I find myself doubting my diagnosis. I didn't have a cysto with hydrodistention. I was diagnosed on a long history of symptoms and a vaginal exam. Part of me wants to tell myself, "oh you really don't have this dreadful disease that could come back at anytime". In fact I find myself testing the limits every day - eating pizza and chocolate - telling myself I can't have IC if I eat this stuff. But still scared to death to go off the elmiron and hydroxyzine. Then I feel like an idiot for taking medicines for the rest of my life for a disease that maybe I don't really have.
Let me ask you guys a question and maybe I can answer this for myself once and for all. In a normal bladder - if you have a urinary tract infection - is the pain, excruciating? Almost unbearable to the point you wish you could die? Or is this kind of pain with a UTI uncommon in a healthy bladder?
I know one thing I don't want to do is go to the doctor and have invasive tests run to try to help me figure this out. I am quite certain I do have a very bad case of Pelvic Floor Dysfunction and I don't want to do anything to make that worse.
Well, thanks for bearing with me as I kind of "think outloud" here.
Any comments or insights would be greatly appreciated.
I seem to be one of the very lucky ones that seem to be feeling better all the time. I guess I am in remission. The last symptom I had (urinary retention) seems to be going away since I started on Crestor (for high cholesterol - strange, I know!)
It's funny how when you get better you start forgetting to some extent just how bad the pain was before. I think it must be like childbirth. My sister said even though the labor was horrible, the memory of that pain fades away with time. I still have flashbacks occasionally of the most horrendous pain imaginable but I can quickly put it out of my mind. The point I'm trying to make is that now I find myself doubting my diagnosis. I didn't have a cysto with hydrodistention. I was diagnosed on a long history of symptoms and a vaginal exam. Part of me wants to tell myself, "oh you really don't have this dreadful disease that could come back at anytime". In fact I find myself testing the limits every day - eating pizza and chocolate - telling myself I can't have IC if I eat this stuff. But still scared to death to go off the elmiron and hydroxyzine. Then I feel like an idiot for taking medicines for the rest of my life for a disease that maybe I don't really have.
Let me ask you guys a question and maybe I can answer this for myself once and for all. In a normal bladder - if you have a urinary tract infection - is the pain, excruciating? Almost unbearable to the point you wish you could die? Or is this kind of pain with a UTI uncommon in a healthy bladder?
I know one thing I don't want to do is go to the doctor and have invasive tests run to try to help me figure this out. I am quite certain I do have a very bad case of Pelvic Floor Dysfunction and I don't want to do anything to make that worse.
Well, thanks for bearing with me as I kind of "think outloud" here.
Any comments or insights would be greatly appreciated.
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