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What Has Worked For Me

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  • What Has Worked For Me

    Hi Everybody,

    I just wanted to share my good news, though this is my first time posting ever.

    I needed to share my experiences I have with IC for the past 2 ½ years, which have been in pain everyday until recently. I also suffer from Rheumatoid Arthritis and Sjogrens with a recent diagnosis of a chronic lung infection. My Rheumatologist made me get off of the medication Embrel. I had been taking Embrel for about 13 years, but due to my lung infection he took me off of Embrel. For a replacement drug for my arthritis, he prescribed 50 mg ‘Imuran’, while I also started taking the birth control pill continuously for the IC pain.

    To my surprise, in a bout 2 ½ weeks, I noticed I did not have any more IC pain. No more bladder, pelvic or vaginal stabbing pain, nor did I have any further burning pain and my urination frequency improved.

    Following up with my Rheumatologist, I advised him of my research of ‘Immuno-Suppressant’ class of medication to treat IC. His reply was that ‘Imuran’ was an ‘Immuno-Suppressant’. He felt that the ‘Imuran’ would be the cause of the pain relief. His next advice is for me to get off of the birth control pills due to a high possibility of the side-effects of blood clots. I have been off of the birth control pill and I am on day 25 of being pain-free.

    I thank God everyday, also to let others know ‘Imuran’ helped me, but with a warning the ‘Imuran/Azathioprine’ can increase your chances/risk of developing certain cancers, especially skin cancer and lymphoma with other side-effects.

    Thank You for letting me share this with you all.

  • #2
    That's wonderful. I've had IC pain everyday for about the last 2 1/2 years too. It's funny how you just stumble across something totally unconnected to the IC and it works. It's worth looking into. Thank you for passing this along. I hope this continues to work for you. Keep us posted to any changes.


    • #3
      I am so glad you're feeling better & am not surprised at the immune connection to all of this. I hope you just keep feeling better & better!

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
      Source - Pinterest

      Current treatments:
      -IC diet
      -Elavil 50mg at night
      -Continuous use birth control pills (4-5 periods/year)
      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
      -Pyridium if needed,
      -Pain medicine at bedtime daily, as needed during the day several times per week
      -Antibiotic when doing an instillation to prevent UTI
      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
      -Dye Free Benadryl 50 mg at bedtime
      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
      -Managing stress= VERY important!
      -Fur therapy: Hugging the cat!