Announcement

Collapse
No announcement yet.

Do you beleive in this treatment from a doctor?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Do you beleive in this treatment from a doctor?

    http://www.b-p-s-a.org.uk/mast_cells_and_ic.htm


  • #2
    This is a well-known issue. In fact, when they do a bladder biopsy as part of a cystoscopy with hydrodistention, they are looking largely for the presence of mast cells in the bladder wall, which then signifies IC.

    This theory is why many IC specialists and other urologists prescribe an antihistamine like Atarax or Vistaril to their patients -- to attempt to slow mast cell degranulation in the bladder and thus, help alleviate some IC symptoms.
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3


      Do you think i should simply run to the pharmacy to buy anti-histamine stuff?
      It's simpler than the bladder biopsy

      Does it ring a bell to ANYONE?--->I FEEL BETTER DOWN THERE WHEN I HAVE A SINUSITIS!!!LESS CONSTIPATION AND LESS PUBIC PAIN !

      Comment


      • #4
        lol.......I wouldn't just run to the store. Vistaril and Atarax are the best. They are actually more specific to the skin (and thus the bladder) than Benedryl.

        Personally, if I had to give up every other medication I would kick, scream, fight, beg, borrow, (ok I wouldn't steal ) my Atarax. It was truly a lifesaver for me.
        Julie Beyer, MA, RDN
        IC Dietitian, Patient Advocate, Speaker, & Author


        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

        Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

        You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

        ........ ........


        Other IC Diet Resources:

        IC Diet Webinar
        IC Diet Website
        For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
        Free IC Diet Booklet: What Can I Eat?
        Confident Choices IC Diet Blog
        IC Diet Newsletter


        *Let's Connect!*

        Comment

        Working...
        X