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wHAT PERCENTAGE OF THE TIME DO PEOPLE WITH IC FEEL GOOD?

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  • #16
    I have been having some pretty good days now.. I was only dg 7 months ago, but feel I have had some symptoms of IC most of my life.. But I just started having the pain.. So I would say I have 4 days out of 7 that I am feeling pretty good..
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #17
      I am constantly in pain unless I am on my pain meds. I never have a symptom free days as others talk about. I hope that in the futute I will!!!! I am counting on that.

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      • #18
        Ditto ABliske!!!

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        • #19
          Wow, I'm kind of amazed that so many people feel so good so often! That's great news and gives me hope.
          I have: Interstitial Cystitis,Eustacian Tube Dysfunction, IBS, Sciatica.

          I take: Elavil 50 mgs, Balziva birth control, and Elmiron instillations.

          I am: Not my disease.

          My Myspace Page: http://profile.myspace.com/index.cfm...iendid=4249067

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          • #20
            I am pretty much symptom free. I can eat and drink what I want. My doctor said my IC was brought on by my chemo. I think my bladder is pretty well healed and right now I am not on anything. I have minor flares sometimes, but not often.

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