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Something that helps

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  • Something that helps

    I have found that the happier I feel, that I feel less symptoms, There have been two time when I call up and old friend and it cheers me up so much, that I start to feel less symptoms, and a lot better. It also helps hearing from you all on this Ic support message board. I think we all need to try to think of all the things that make us happy and do them as often as we can. I really do believe that stress makes this worse!

  • #2
    That is so true Gwen. When something stresses me out sometimes I can actually feel my bladder spasm and the pain start. I try to relax but sometimes it's so hard w/ everything going on. I'm glad you're finding so much relief from talking to friends

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      When I feel super happy, or excited about something, it's like I forget about the discomfort and I am not constantly thinking about it. When you think about it, I think you feel worse.


      • #4
        I agree with both of you, when im stressing my bladder stresses this is one of my main triggers.. When I am calm and have ate the right things I usually feel pretty good.. That is one reason I ask to be put on an antidepressant because it keeps me from worrying so much and stressing over little things..It would be nice if we all could just be happy all the time

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          If I'm not over-tired or over-stressed, and I'm able to get out and stay busy, and work, then I don't feel it as much. But if I don't have the energy to do that, then I'm totally in trouble. Of course, it's possible that it will catch up later. Now that I'm on Topamax it doesn't even catch up with me, which is wonderful, but it used to. The only issues I'm fighting off of my pain meds, is the restless leg, the frequency, VV, and a few others that escape me at the moment. But that's straying, sorry.


          • #6
            I have to agree. If I wake up feeling good, I feel thankful and enjoy the day. I flat out refuse to worry about tomorrow! It will get here anyhow and I might feel good again.

            Stay safe

            Elmiron Eye Disease Information Center -
            Elmiron Eye Disease Fact Sheet (Downloadable) -

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help:


            Diet list:

            AUA Guidelines:

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Anyone who says something is foolproof hasn't met a determined fool


            • #7
              Moonheart, how much topamax do you take a day. I,m hoping to talk my Doc into giving it to me insteAD of lyrica. Thank you. does it help with the pain and vv.