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First let me say that I've had one urologist say he thought I had IC... and another one say I had PFD, but no IC.
Last January, exactly a year ago, after feeling great for many months, I started having frequency and pressure again. I went back on elavil, and since then have felt better, some days very good, some days so-so, but the general trend was improvement. I did, though, notice a pattern of having worse days on approximately day 10 - 12 of my monthly cycle, which made me suspect that my symptoms were related to/influenced by fluctuating hormones. (I'm 49) Anyway, right after Christmas, I decide to wean off the elavil (which only took about a week since I was only on 10 mg).
Well, the last three days, I have felt completely "NORMAL." I'm hoping this feeling will just last and last, but who knows. Besides stopping the elavil, the only thing I've been doing differently is started drinking Pellagrino mineral water every day. (Hope I'm allowed to mention a name brand here.)
I'm just hoping these good days last... and wanted to share my "success" with all of you.... especially those who are feeling particularly down. It appears that whether you have IC or PFD or both, nothing is "static" with these conditions, meaning there should always be hope that better days are just around the corner. I'm hoping this helps someone feel better today.
Last January, exactly a year ago, after feeling great for many months, I started having frequency and pressure again. I went back on elavil, and since then have felt better, some days very good, some days so-so, but the general trend was improvement. I did, though, notice a pattern of having worse days on approximately day 10 - 12 of my monthly cycle, which made me suspect that my symptoms were related to/influenced by fluctuating hormones. (I'm 49) Anyway, right after Christmas, I decide to wean off the elavil (which only took about a week since I was only on 10 mg).
Well, the last three days, I have felt completely "NORMAL." I'm hoping this feeling will just last and last, but who knows. Besides stopping the elavil, the only thing I've been doing differently is started drinking Pellagrino mineral water every day. (Hope I'm allowed to mention a name brand here.)
I'm just hoping these good days last... and wanted to share my "success" with all of you.... especially those who are feeling particularly down. It appears that whether you have IC or PFD or both, nothing is "static" with these conditions, meaning there should always be hope that better days are just around the corner. I'm hoping this helps someone feel better today.
I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC. 
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