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  • #1

    I am new but found relief....

    Ibuprofen helped stop my pain during a 3 week flare with AZO Pain. (I also take Claratin every morning and Mucinex as needed. I have low thyroid- Levoxyl)
    That was when I figured out it must be "bladder inflammation" ! So I started looking on the web and found this IC website, WOW ! It started making sense when I looked at the "food diet"....this has been going on for about 3 years now, especially during the Thanksgiving/Christmas holidays (lots of IC foods!). I am 56 yrs old. Winter made me drink hot things (hot Choc/coffee/tea) also . I could not put my finger on it back then, now I know. I made a few trips to the Doc which said "Bladder infection" but one time I had to go right back and they said "no bladder infection"...that left me puzzled but that flare I did attribute to coffee and hot chocolate. Now I have it under control with THE DIET.....I have also been using the baking soda/warm water like I found on this forum for immed relief if I "try" a little something new. I am so glad I found this website before I got to be in such terrible condition as others who write on here. Bless them. Now I am giving away all my home canned pickles, muscadine jelly, and peaches ! They tore me up! I instructed hubby this spring we will plant squash to put up instead of cucumbers, and plant blueberries...I can still use the peaches to make covered dishes to take out! I am going to try the CystoProtek to see if it will help heal and strengthen the bladder lining. I have started taking Glucosamine/Chondroidin a couple times a week till then. I have also started the pelvic floor excercise. The best to all of you. I love the recipe section !
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  • #2
    Well a BIG and I'm glad that you are finding things that are helping you!! Good for you. The diet really does help but I have agree, I miss my pickles, coffee etc. But the trade off is worth it!!!
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

    Comment

    • #3
      Lots of people with interstitial cystitis find ibuprofen is a problem. I know I can't take it. Have you been diagnosed with IC?

      Don't give up on the peaches and jelly even if you do have IC. I know I can have peaches occasionally, and I do eat small amounts of jelly. And your husband will enjoy the pickles.

      I'm glad you're feeling better.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        we make our pickles like bread and butter type, with apple cider vinegar (which is non-acidic, actually alkaline) and cinnamon sticks and Bob can have that once in a while. Actually chop them up and make relish. There are solutions to every problem, and there are no problems, only solutions. Do you put citric acid in your peaches? That may be an issue. I do make a blueberry cook down instead of cranberries because Bob HAS to have sauce with chicken and turkey (MEN). There are alternatives for everything, trial and error. Good luck, hope you feel better soon. Jill, wife of Bob

        Comment

        • #5
          Vinegar is an acid and is a problem for many, if not most, people with interstitial cystitis.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment

          • #6
            Have you tried taking Prelief before drinking or eating trigger foods? Also, it would be good to take the Glucosamine/Chondroitin supplement daily instead of just a few times per week.

            Comment

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