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Dear wonderful people,
24 months into this long journey. I know this is IC but I figured myabe symptoms is the best place to post this. I know this probably sounds a little corney, but for the few weeks I have known about IC all you have become like a family for me ... People I feel could understand me. I do not officially have my IC diagnosis (as they require like CT scan and bladder scop). CT Scan found a rather large kidney stone and that a stent that was supposed to be removed on October 18, 2009 was still in there. The kidney stone is in my bladder and I was told it was between the size of a gumball and a golfball. That plan today was to go into surgery to bust open the stone and to remove the stent. And to go ahead and give me my bladder scope. (Why take 3 trips to Walmart ... you're already there, right lol)
So I just wanted to share what happened today in surgery. The stone was the largest stone I've ever heard of. The urologist said it was the size of an ORANGE, which would explain that i have no room for urine and they could not remove my stent bc there is so much calcium around it. Funny for 2 years I've had a bladder infection and tons of pain. My orange size stone was busted up into a million little pieced so I imagine that my bladder looks like a bag of pebbles. They also put in a new stent. Since my sister is taking care of me now, they have asked her to call into the urologist and set up an appointment for me for shock waves .... she said it's like a sonogram that vibrates so they can knock that calcium off my stent.
When they thought my kidney stone was the size of a gumball looking at my CT scan they gave me pain medicine and have become more sympethtic. I have tons of pain medication. Although I do believe getting rid of this kidney stone will very much help the pain, I do firmly believe I have IC still. Not that I want it, but before they gave me then stent the pain was the same kind of pain which has been described by many of you. I guess it really has hurt my feelings dealing with this for 24 months, always being brushed away as a UTI ... Here is some bactrum. My husband recognized that's all they're doing to me and thought I was having an affair since I would no longer have relations. The first stent? Well I don't think it was put in right or that I never had a stone, but it was blocking this puppy so maybe my tummy will look smaller. And I also wanted to share (probably a little graphic), but I'm up tonight just to potty again and again and I kind of felt down there and felt something poke my finger and if I kind of open up my inner labia I can litterally see stones and when I stood up looking one fell on my bathroom floor. I don't know that this is a success story per, say bc I do believe I have interstitial cystitis but I do feel like they have to go through steps and I will cooporate bc my quality of life has been affected greatly. I cannot play on the floor withi my 1 year old I was GM at my last job and had to quit. I now work at a call center doing customer service for a cell phone company. Please don't shun me from here since I may no have IC. You people I have never met have helped me more than anyone in the past 2 years. I want to thank you all. I am to the point of an extreme depression and lonliness. Had I not've been a mother I would have taken the easy way out. But I don't believe in that anyway. I'd go to the doctor and they'd tell me I have a UTI and offer pyridium(sp?) for my "discomfort." Today before surgery I told them if I could end up with "discomfort" for the rest of my life, I'd be a happy customer. I'm 21 I don't look like there is anything wrong with me so why would they take me seriously??? I will come back to update all you beautiful, strong, wonderful women (and men). Thank you so much for your posts and the chat last Monday. Made me feel like I wasn't an outcast. Thank you and God Bless you all!
PS - Have any of you ever heard of a stone the size of an orange? This is really outrageous to me!
Loving thoughts,
Emilee
24 months into this long journey. I know this is IC but I figured myabe symptoms is the best place to post this. I know this probably sounds a little corney, but for the few weeks I have known about IC all you have become like a family for me ... People I feel could understand me. I do not officially have my IC diagnosis (as they require like CT scan and bladder scop). CT Scan found a rather large kidney stone and that a stent that was supposed to be removed on October 18, 2009 was still in there. The kidney stone is in my bladder and I was told it was between the size of a gumball and a golfball. That plan today was to go into surgery to bust open the stone and to remove the stent. And to go ahead and give me my bladder scope. (Why take 3 trips to Walmart ... you're already there, right lol)
So I just wanted to share what happened today in surgery. The stone was the largest stone I've ever heard of. The urologist said it was the size of an ORANGE, which would explain that i have no room for urine and they could not remove my stent bc there is so much calcium around it. Funny for 2 years I've had a bladder infection and tons of pain. My orange size stone was busted up into a million little pieced so I imagine that my bladder looks like a bag of pebbles. They also put in a new stent. Since my sister is taking care of me now, they have asked her to call into the urologist and set up an appointment for me for shock waves .... she said it's like a sonogram that vibrates so they can knock that calcium off my stent.
When they thought my kidney stone was the size of a gumball looking at my CT scan they gave me pain medicine and have become more sympethtic. I have tons of pain medication. Although I do believe getting rid of this kidney stone will very much help the pain, I do firmly believe I have IC still. Not that I want it, but before they gave me then stent the pain was the same kind of pain which has been described by many of you. I guess it really has hurt my feelings dealing with this for 24 months, always being brushed away as a UTI ... Here is some bactrum. My husband recognized that's all they're doing to me and thought I was having an affair since I would no longer have relations. The first stent? Well I don't think it was put in right or that I never had a stone, but it was blocking this puppy so maybe my tummy will look smaller. And I also wanted to share (probably a little graphic), but I'm up tonight just to potty again and again and I kind of felt down there and felt something poke my finger and if I kind of open up my inner labia I can litterally see stones and when I stood up looking one fell on my bathroom floor. I don't know that this is a success story per, say bc I do believe I have interstitial cystitis but I do feel like they have to go through steps and I will cooporate bc my quality of life has been affected greatly. I cannot play on the floor withi my 1 year old I was GM at my last job and had to quit. I now work at a call center doing customer service for a cell phone company. Please don't shun me from here since I may no have IC. You people I have never met have helped me more than anyone in the past 2 years. I want to thank you all. I am to the point of an extreme depression and lonliness. Had I not've been a mother I would have taken the easy way out. But I don't believe in that anyway. I'd go to the doctor and they'd tell me I have a UTI and offer pyridium(sp?) for my "discomfort." Today before surgery I told them if I could end up with "discomfort" for the rest of my life, I'd be a happy customer. I'm 21 I don't look like there is anything wrong with me so why would they take me seriously??? I will come back to update all you beautiful, strong, wonderful women (and men). Thank you so much for your posts and the chat last Monday. Made me feel like I wasn't an outcast. Thank you and God Bless you all!
PS - Have any of you ever heard of a stone the size of an orange? This is really outrageous to me!
Loving thoughts,
Emilee
I'm glad you found us. 
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