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Doe's anyone know the percentage effect on using prelief?, I would hate to buy it and it don't work!
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For me Prelief only worked once I sort of had my symptoms under control using other therapies. After that Prelief only helps me to avoid flares, not really to take away my symptoms in general. Are you on any other medications to help control your IC?Update! Feeling much better these days and no longer on any meds!
Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.
Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).
Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).
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I use it when I am having questionable food, ie wine seems to work ok.
SuzanneComment
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It is a life saver for me. When I was first DX'd, I would take as many as 6 prior to an acidic food. Still, to this day I rely on it. I think it is worth a try.Minds are like parachutes-they ony function when they are open.
-Thomas DeWar-
ICN Newbie
Volunteer
*ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.Comment
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it causes me constipationcurrent meds- ditropan 5mg xl, neurontin 300 mg. zanaflex for pelvic floor spasms Most meds, IC meds included, cause me bladder pain
previous med- elmiron( nothing after 8 months), atarax ( to sleepy), ditropan ( retention), Cymbalta, cystoprotek( worsened flare) has helped many others, aloe vera ( worsened flare), lyrica( irritated bladder.
interstim implant (reduces my ic pain)January,2007Comment
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Hi, Linda May ~ I have used Prelief for well over a year now and still take it with anything I eat or drink since even water seems to affect me. I do believe it helps tremendously (I keep them with me at all times) but I am on other treatments so it's questionable if Prelief alone would be as helpful. I agree that it's definitely worth a try along with the IC Diet for sure!!!!
Hopefully you're finding what works for you soon.
Blessings,Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure.
I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
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