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  • University Graduation

    GOOD MORNING!!!!

    Just thought I would offer some hope this morning, and share with you about my success yesterday I hope this is just ONE of the success stories that I write

    Yesterday I graduated from the University of Calgary with my Social Work degree

    I had the MOST AMAZING day, not only because I was graduating with my family, friends and boyfriend watching and cheering me on; but because my bladder was calm and perfectly normal.

    I was absolutley terrified (as we can all relate) of sitting in the middle of a HUGE gymnasium with 2000 + people with no bathoom in sight--- and the ceremony was at LEAST 3 hours long... I thought I might faint. lol

    WELL I peed once in the morning at 7 am. I didnt NOT PEE again until 1:30 pm!!!!!!!!!!!!!!!!!! and not ONLY that, I didnt feel the NEED to pee until about 1 pm. My bladder was perfectly calm during the whole entire ceremony, even when I was up on stage in front of all those people! I was amazed, thrilled, and even cryed a little bit to myself... I was so greatful. This has been such an accomplishment for me, because 4 months ago I could barley get through ONE day. I was crying, depressed, lonley and hopeless... I thought I might have to give up my dream of graduating all together.
    SOMEHOW, I managed to get through it all- and even though IC struck me when I was going in to my last semester of University, I made it through!

    I was able to take amazing pictures with all my fellow classmates, family, and friends, and I was able to forget about my bladder for the entire day.

    I was even able to have sex twice (spontaniously I might add.. lol) without pain and pee only three more times. Which is perfectly normal number of 5.

    This morning I sit here and I still feel good I never thought when this all started that I wouldn't be able to carry on with my life, and I was terrified of losing everything. I am happy to report that this has not happend. I am 24 years old, I am healthier than I ever have been diet wise, I have an incredible boyfriend and family, and I still have my one of a kind personality. There is hope.

    It is true that this gets better for many with the right combo of meds, diet and willpower that we all have and need to get through, and although some days may be uncomfortable and draining we all manage to persevere. I have discovered that people with IC are INCREDIBLY strong, resilient and AMAZING. Props to all of us

    While I do not consider myself to be in remision quite yet (getting there though), I do consider my accomplishments to be a success! I have the degree and pictures to prove it!!!!!!!!!!!

    Hang in there newbies and oldies!!!!!!!!!!!! There is life after IC.

    Love Jenn
    28 yrs old,

    I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

    What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

    Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!



    Me in my graduation gown!


  • #2
    Congrats..... I know you are extremely happy!
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily

    Comment


    • #3
      Way to go Congrat on your graduation and the bladder improvement.

      MG
      My are with you all. May you all find a way to peace and joy in your lives.

      Comment


      • #4
        Wow!

        Congratulations!



        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Wonderful, wonderful news!!! Congratulations!
          Julie Beyer, MA, RDN
          IC Dietitian, Patient Advocate, Speaker, & Author


          Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

          Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

          You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

          ........ ........


          Other IC Diet Resources:

          IC Diet Webinar
          IC Diet Website
          For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
          Free IC Diet Booklet: What Can I Eat?
          Confident Choices IC Diet Blog
          IC Diet Newsletter


          *Let's Connect!*

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          • #6
            Congrats again on your graduation.I admire you girl for everything youve done.You are beautiful inside and out.You truly do have a one of a kind personality I believe it was an act of God and of course everything you've been doing for yourself that you survived during your ceremony and afterwards without ic bothering you.Most importantly you had fun and i bet you felt like you had your "old life" back for a moment,eh? i totally agree with this statement you made:
            It is true that this gets better for many with the right combo of meds, diet and willpower that we all have and need to get through, and although some days may be uncomfortable and draining we all manage to persevere. I have discovered that people with IC are INCREDIBLY strong, resilient and AMAZING. Props to all of u

            PS Youre right this will be one of many success stories posted.
            Newly IC diagnosed as of February 2011.

            Medications I'm on that seem to work:
            Zoloft- one once a day
            Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

            Failed Meds:
            Elmiron-after 4 months,digestive side effects got to be too much
            tramadol-allergic
            DMSO treatments(5-6)
            probiotics

            THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
            AROMATHERAPY-candles,incense
            Village Naturals Aches and Pains Peppermint Bath Salts
            Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

            ACUPUNCTURE/HERBS
            Significant pain relief so far.

            MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

            Add me on facebook Angela Hasic

            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            Lord, make me an instrument of your peace;
            where there is hatred, let me sow love;
            when there is injury, pardon;
            where there is doubt, faith;
            where there is despair, hope;
            where there is darkness, light;
            and where there is sadness, joy.
            Grant that I may not so much seek
            to be consoled as to console;
            to be understood, as to understand,
            to be loved as to love;
            for it is in giving that we receive,
            it is in pardoning that we are pardoned,
            and it is in dying [to ourselves] that we are born to eternal life.

            Comment


            • #7
              I am in the child welfare field, and let me tell you...you'll never have a boring day in social work. EVER.
              Your Friend,
              Michelle

              Diagnosed: 10/16/09

              Elmiron, 100mg 2x per day
              Imipramine, 10 mg per day
              Diazepam 10 mg for sleep
              Zyrtec
              Zovia, birth control (ongoing-no periods)
              Probiotics
              Hydrocodone, 2 pills a day (at any time of day)

              Comment


              • #8
                Congratulations!

                Hi,

                Well done on completing the course. I finish the first year of my social work MA next week... Small world eh! I know how tough it is even without the ic- so well done you must have worked really hard!

                Now you can relax & enjoy the summer.

                Sarah.x

                Comment


                • #9

                  You go girl!

                  Congratulations!
                  Vicki
                  "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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