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My success with D-Mannose...PLEASE give it a try!

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  • My success with D-Mannose...PLEASE give it a try!

    Hi everyone, I am new here but am excited to share my story. I have lurked these boards for a little while as I have been dealing with cytitis-like issues. I have had a few UTI's in my life, and doctor's always gave me antibiotics which would clear it up. The most recent UTI was about a year ago, and that is when everything went downhill. Four different antibiotics were given, but none seemed to work. Eventually I used a European herb called Uva-Ursi which cleared up symptoms for a few days, but the symptoms came back. I than tried a supplement called D-Mannose and it was like an instant miracle. It cleared up all symptoms for several weeks. Also, it has no side-effects because it's basically a sugar that is NOT digested by the body. The bacteria grab onto the D-Mannose, and your body flushes the bacteria out. However, sadly the symptoms came back. I was being very careful with hygeine but it seemed like the UTI kept coming back. I went to several doctor's over the course of several months, most tried to give me antibiotics saying "we treat the symptoms, not the disease" (which I refused to take anymore), and some said there was no infection and it was probably cystitis. Meanwhile my symptoms were getting so bad. I literally had to pee 24-7, and it was so uncomfortable I could barely function.

    I went into full-research mode and scoured the web for studies about cystitis. I came upon some research about biofilms. Basically the biofilms theory says that bacteria can build walls around themselves to make themselves immune from antibiotics and other treatments. They can hide in different areas of the bladder and come out at any time. This is why you can go symptom free after an antibiotic/herbal treatment (you temporarily get rid of the active bacteria), but the bacteria hiding inside biofilms will stay dormat and come back out once treatment is done. The researcher believed SOME cases of cystitis might actually be uncured UTI's (which come back negative on UTI tests because they are in hiding). Also, taking antibiotics and other treatments (olive oil, oregan oil, uva ursi, goldenseal) only makes the bacteria stronger.

    I figured if this biofilm stuff was true, maybe I had the same type of biofilm bacteria. I realized my infection may have kept coming back because I ended treatment (with the D-Mannose) too soon. If you leave even one little biofilm bacteria behind it can turn back into a full blown infection. That is why you have to take the D-Mannose in a way that will get rid of all bacteria. I decided to try the D-Mannose again since it seemed to work before, and there are no side-effects. After reading more information on the D-Mannose, I realized I was too lax on my previous treatment. I began taking the D-Mannose every 1-2 hours the first few days. The symptoms went away immediately. I kept taking the D-Mannose every day until I was down to about 2-3 doses a day. I now have been symptom free for months. I keep D-Mannose on hand just in case a flare comes back up. I think the key to taking the D-Mannose is getting the concentration levels high enough that all the bacteria are eliminated. Also, you have to keep taking it to ensure you do not leave any bacteria behind.

    I realize this will not work for everyone, but even if it only helps one person it is worth telling my story. It has no side-effects, and is relatively cheap. You can buy the pure powdered form on amazon for a good price. I hope this helps someone.

  • #2
    That is awesome!! Were you ever diagnosed with IC or only cystitis? Did your urine cultures always show bacteria??

    Comment


    • #3
      Some who have interstitial cystitis and also get infections are taking d-mannose with some success. I haven't tried it since it's been something like 15 or 16 years since I had an infection.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        I never have infections so I don't think that it would help me either. I am glad that you are feeling better.

        Sandra
        Link to the patient information, everything from What is IC? to Disability
        http://www.ic-network.com/patientlinks.html

        American Urological Association Clinical Guideline
        Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
        http://www.auanet.org/content/guidel...ent_ic-bps.pdf

        Comment


        • #5
          this is awesome. i always had true infections. your story sounds very similiar to mine. off to amazon i go to try d-mannose soon.
          Newly IC diagnosed as of February 2011.

          Medications I'm on that seem to work:
          Zoloft- one once a day
          Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

          Failed Meds:
          Elmiron-after 4 months,digestive side effects got to be too much
          tramadol-allergic
          DMSO treatments(5-6)
          probiotics

          THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
          AROMATHERAPY-candles,incense
          Village Naturals Aches and Pains Peppermint Bath Salts
          Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

          ACUPUNCTURE/HERBS
          Significant pain relief so far.

          MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

          Add me on facebook Angela Hasic

          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          Lord, make me an instrument of your peace;
          where there is hatred, let me sow love;
          when there is injury, pardon;
          where there is doubt, faith;
          where there is despair, hope;
          where there is darkness, light;
          and where there is sadness, joy.
          Grant that I may not so much seek
          to be consoled as to console;
          to be understood, as to understand,
          to be loved as to love;
          for it is in giving that we receive,
          it is in pardoning that we are pardoned,
          and it is in dying [to ourselves] that we are born to eternal life.

          Comment


          • #6
            Re: My success with D-Mannose...PLEASE give it a try!

            I just reposted this!
            I'm cured because I read it and did exactly as Mel did.
            Thank you Mel and IC Network!

            Comment


            • #7
              Re: My success with D-Mannose...PLEASE give it a try!

              How much D mannose did you take every couple of hours? Did you take it through the night every one to two hours? I have 500 mg pills so just wondering how much I should take and for how long. Did you take it for months?

              Comment


              • #8
                Re: My success with D-Mannose...PLEASE give it a try!

                Originally posted by Saragusa View Post
                How much D mannose did you take every couple of hours? Did you take it through the night every one to two hours? I have 500 mg pills so just wondering how much I should take and for how long. Did you take it for months?
                Most supplements come with instructions about dosage and frequency --- if you opt to try one, please check with your doctor before exceeding the recommended dosage.

                I have read some good things about D-mannose as an infection preventive.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #9
                  Re: My success with D-Mannose...PLEASE give it a try!

                  Thank you! I'm beyond happy for you!

                  Comment

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