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Great 4th of July!

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  • #1

    Great 4th of July!

    My husband and I have had the tradition of going to an amusement park on the 4th of July since we began dating. I began having pelvic pain late July of last year, and by September it was debilitating, and I was pretty much bed-ridden. I was so upset at the thought of ruining our 4th of July tradition, especially as this was the first year we would be taking my stepdaughter, as she just hit the magic 48 inches for rollercoasters! (Yes, we are mean and evil and don't want to hang out in the kid's portion of the park!)

    After working with a physical therapist, and dutifully taking my medicine(s), and watching my diet for the 9 months since diagnosis, I am happily able to say... we went to the amusement park! I had barely any pain the whole time, and we were go-go-go for hours! My stepdaughter had the time of her life, and we didn't get home until close to midnight. We went for an early dinner beforehand so I wouldn't need to figure out what to eat in the park, and they sold bottled water there, so I was set. It was a great time, and I am so happy I didn't feel like I was letting my family down by not participating in something we all look forward to.
    Symtoms started July 2010.
    Severe pelvic floor pain only.

    2 time PT graduate!
    In medical remission since August 2011; able to eat and drink anything I want currently.

    IC meds:
    200 mg Elmiron in the morning
    100 mg Elmiron @ night
    Macrobid after intercourse

    03/11 07/11 01/12
    If at first you don't succeed: 07/26/2013!
    Tags: None
  • #2
    Great 4th

    How excellent!! I hope your fun times continue.
    Laurie

    Comment

    • #3
      That's awesome.
      IC diagnosis 3 weeks ago.
      Vesicare 10 mg once daily
      IBS and Gerd-Zegerid
      IC diet
      Elmiron 100 mg three daily
      Hydroxyzine 25 mg at night
      Amitriptyline 10mg at night
      Diovan 60/12.5 daily
      Topral 50 mg daily
      Zoloft 100 mg at night
      Klonopin .5 twice daily

      Comment

      • #4
        That's fantastic!
        March 2011-Symptoms began
        May 2011-Tentative diagnosis by OB/GYN
        October 2011-Confirmed diagnosis -- IC/PFD

        Current treatments:
        Elmiron- 300 mg (Began 12/11)
        Hydroxyzine- 50-75 mg (Began 7/11)
        Tizabidine- 2mg 3xTID, if needed (Began 12/11)
        IC Diet-Began 5/11
        Pelvic Floor Therapy-Began 12/11

        Current Supplements:
        Cystoprotek
        Magnesium
        Fish Oil
        Biotin

        Comment

        • #5
          Wonderful!

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            Always good to hear someone doing so well.

            Comment

            • #7
              doing well

              Wow,
              that's great. I have the same fears/concerns because I'm raising 2 of my grandchildren, and I feel like I let them down.


              thats wonderful,
              lizzie_71

              Comment

              • #8
                i just returned from my orlando vacation june 30-july 7... i didnt hurt the whole time during 4th of july either got to eat out and go to the beach and such!Yay for pain/ic free vacays!
                Newly IC diagnosed as of February 2011.

                Medications I'm on that seem to work:
                Zoloft- one once a day
                Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                Failed Meds:
                Elmiron-after 4 months,digestive side effects got to be too much
                tramadol-allergic
                DMSO treatments(5-6)
                probiotics

                THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                AROMATHERAPY-candles,incense
                Village Naturals Aches and Pains Peppermint Bath Salts
                Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                ACUPUNCTURE/HERBS
                Significant pain relief so far.

                MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                Add me on facebook Angela Hasic

                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                Lord, make me an instrument of your peace;
                where there is hatred, let me sow love;
                when there is injury, pardon;
                where there is doubt, faith;
                where there is despair, hope;
                where there is darkness, light;
                and where there is sadness, joy.
                Grant that I may not so much seek
                to be consoled as to console;
                to be understood, as to understand,
                to be loved as to love;
                for it is in giving that we receive,
                it is in pardoning that we are pardoned,
                and it is in dying [to ourselves] that we are born to eternal life.

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                • #9
                  great 4th

                  Flower,
                  that's wonderful!
                  Stay well.
                  Laurie

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