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feeling hopeful!

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  • feeling hopeful!

    Hi everyone. I am relatively new to the site. I joined about a month ago when doctors were pretty certain IC was causing all of my pelvic pain.

    i will not know for certain until Friday when I have a laparoscopy done, but i am really happy to report that going off the birth control pill, using quercetin complex 3x a day, and 12.5mg of Elavil has pretty much completely stopped my pain.

    This is someone who was going to the washroom every 10 minutes sometimes, up to 3x a night, had pain down my legs, up my back, my tailbone, right side, left side, you name it. pressure, pulling, cramping, pinching, fullness. absolute hell. i was sleeping with a heating pad on every night and every chance that i got when I was home.

    i do not know if I have IC or endometriosis but I should have a better idea, like I said on Friday.

    Does anyone have any thoughts ? and is it possibile that I have/had both endo and IC. maybe I am just in remission. I do still have symptoms just much much less than before.

    This condition runed my summer and almost my relationship. I finally feel that there is hope.

    Much love and luck to everyone.
    28 years old
    UTI's for 10 years
    very bad urgency and frequency started Aug '10 Severe pressure, pain and burning in bladder, lower back, and thighs since May '11.
    endometriosis removed (Sept 15th)
    chronic pelvic pain since then
    I currently take: elavil 25mg mg at night
    clonazepam .25 mg daily for anxiety and nerve calming
    baking soda occasionally
    Marshmallow root tea/capsules occasionally
    other: heating pad/ice packs daily
    deep breathing
    pelvic phsyio since jan '12

    testing :cystoscopy ( urlogist said I have a small bladder but nothing abnormal)
    many..MANY urine tests that all determine I do not have an infection.

    ultrasounds for pre and post void (nothing abnormal)

    things I would like to try :MSM, silver, medicinal mushrooms

  • #2
    It's good to hear you are feeling better. Thank you so much for sharing your news. And I hope the lap goes well for you.

    Stay safe

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    • #3
      Good Luck and Best Wishes

      Let's keep praying for a cure.
      IC Symptoms began in early 2001
      Divorced : Sept 2002 (Partly due to IC)
      Diagnosed with IC in April 2004
      Most recent injury - Rupurtured Left Achilles Tendon
      Wed Jan 28 2009
      (Ice Storm Accident)
      2nd Achilles Tendon Surgery - May 28, 2009 after re-injury on May 17
      Other Injuries
      Broken Left Ankle - July 2004 ( fell off ladder)
      Broken Left Ankle (Again) - May 2005 (car accident)
      Sprained Left Ankle - November 2006 ( fell off my aunts porch on Thanksgiving Day)

      Elmiron, Pyridium