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  • #1

    letter from senator

    not long ago I was sent a petion to sign regaurding IC, you didnt have to put your last name or email address, but I chose to add all my info and write in the space provided, I explained my IC, Fibro, Myofascial pain syndrom, and all that came with it. I recieved this via email today: I deleted my last name and home address.

    January 6, 2004


    Mrs. Cynthia
    Thank you . . .

    . . for contacting me regarding your support for increased funding for the National Institutes of Health (NIH). I share your view and appreciate hearing from you.

    I have been a long-time advocate for health research. I believe that increased medical research funding is one of the most beneficial investments our country can make. It provides assistance to people in need immediately, and new discoveries and medical enhancements will continue to help our families, neighbors and friends for many years.

    As a member of the House of Representatives and now as a U.S. Senator, I have supported NIH budget increases. I will continue to strongly support measures that would increase the NIH research budget.

    Thank you for taking the time to share your views with me. Please do not hesitate to contact me again, whenever I can be of assistance to you in the future.


    Sincerely,
    Debbie Stabenow
    United States Senator
    'The will of God will never take you where the Grace of God will not protect you.'
    Tags: None
  • #2
    That's great! Way to get the word out about IC! (And fibro and myofascial) Great idea

    Glad she wrote back, shows that she really does care.

    Hugs and love,
    Jess
    Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

    Comment

    • #3
      That's great Cindy. kissing
      Louise
      West Virginia Interstitial Cystitis/Prostatitis Support Group Leader
      [email protected]

      Comment

      • #4
        Cindy,

        You go girl. Way to get it out there. Keep at it.

        Success grouphug

        Comment

        • #5
          Cindy,
          That was so nice of you to take the time to write that letter. And the fact that you were heard, should inspire others to do the same.

          Lyn

          Comment

          • #6
            Cindy that is great. At least someone is hearing about ic.
            Hang in there , There is hope.
            There is hope. Prayer works.

            Love, Debbie

            Comment

            • #7
              Hi Cindy,
              That is great!!! Isn't she the same onr that takes senior citizens to Canada to get their drugs cheaper?? Seems like I remember her from living in Michigan.
              Hugs
              Susan
              Susan
              People may not remember exactly what "you did, or what you said, but- they will always remember how you made them feel"

              Comment

              • #8
                That is wonderful Cindy. Way to go! grouphug
                Medicine taken daily or as needed:
                1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                2. MS.Cotin 100mg 3x daily
                3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                4. Fentanyl 100 mg Change every 48hrs.
                5. Gentamicin 80mg install after each rescue treatment
                5 Leviquin 500mg self start as needed.
                6. Klonopin 1 or 2 daily as needed.
                7. Prosed/DS as 1 every 6hrs as needed.





                I have IC, but IC doesn't have me anymore!

                Comment

                • #9
                  Cool!!!!!! scream
                  Kim

                  Diagnosed August 2001

                  Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

                  Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                  I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                  *****************************

                  “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                  “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                  Comment

                  • #10
                    Hey Cindy, two thumbs up, definitely way to go girl. Good for you, hugs Iris grouphug
                    Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

                    Comment

                    • #11
                      I also heard back from Fla Senator Bill Nelson.. it was nice to hear back.. I re-emailed to be sure to address this at the next mtg, not to just say "if it comes up he will address it"..
                      Looks like you made an impact.. good job!!!
                      Kelly Anne

                      Comment

                      • #12
                        Wasn't she the secretary of state who ran for senator a year or two ago? I'm impressed she wrote you back. Michigan is writing legislation for cards to give the handicapped bathroom access even in places that don't have public bathrooms. I saw a post on it on eatingforibs.com I thought that would be useful, but now I need them for Illinois. (most of the gas stations here have bathrooms unlike Michigan)

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