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Things I CAN do!

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  • #16
    Things I can do:
    I go fishing and boating, I like to hike and travel. I really do just about anything I want to. I just have to prepare, and if I have to pee behind a bush in the timber I do it. If I have to stop to pee when we travel, we stop. I enjoy life.
    Jolene

    "Life is what happens when you are making other plans" John Lennon

    IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

    Information for Patients can be found here.
    http://www.ic-network.com/patientlinks.html


    Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




    Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

    "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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    • #17
      Things I can do, now...

      Shop till I drop...very important lmao
      Have fun with my husband...
      Ride in a car for longer than 30 minutes...
      Enjoy being with my friends...
      Enjoy Sunday School...
      Sit through a sermn at church...
      Walk on my Tread mill...
      Go to the Zoo...
      Go to see a movie and sit all the way through...

      But the biggest thing I can do now...plan a Mission Trip to Afghanistan in early May. Yep, you heard me right...Afghanistan scream
      Sharon

      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

      Where I can be found most days.



      Link to the ICN Patient Handbook:
      http://www.ic-network.com/handbook/

      Link to the IC Diet:
      http://www.ic-network.com/diet/


      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Comment


      • #18
        Afganistan! Way to go Sharon.......that is amazing! How long will you be there and what will you be doing?

        angel
        Julie Beyer, MA, RDN
        IC Dietitian, Patient Advocate, Speaker, & Author


        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

        Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

        You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

        ........ ........


        Other IC Diet Resources:

        IC Diet Webinar
        IC Diet Website
        For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
        Free IC Diet Booklet: What Can I Eat?
        Confident Choices IC Diet Blog
        IC Diet Newsletter


        *Let's Connect!*

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        • #19
          You ladies Rock!

          You give me such encouragement when I read what you can do! Thanks!

          Arcticfox hi

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          • #20
            Hi, Julie and everyone else...

            You asked about the trip to Afghanistan. We (my husband, myself and several team members) will be leaving on April 30 and returning on May 12. We will be giving leadership training to representives of the Afghan Government. We are going as members of the "Memphis-Afghan Friendship Summit". You can go to www.mafsummit.org (sorry, I do not know how to give you a link to this site) to learn more about this group and it's mission.

            This team has been invited by the Afghan Government to help them learn how to be productive leaders. Even though most of the team are from a church here in the Memphis area, we do not publicly speak as Christians. This is a mission of developing relationships with the Afghan people and leadership. They are very aware that we are Christians and are respectful of that. When asked questions, we respond.

            My reason for going is to reach out to the Afghan Women and try to help them in their quest for Women's Rights.
            Sharon

            Shopping??? Did someone mention shopping? I'll get my hat... ;-)

            Where I can be found most days.



            Link to the ICN Patient Handbook:
            http://www.ic-network.com/handbook/

            Link to the IC Diet:
            http://www.ic-network.com/diet/


            IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #21
              Surprise, surprise...the link was automatically given. lmao
              Sharon

              Shopping??? Did someone mention shopping? I'll get my hat... ;-)

              Where I can be found most days.



              Link to the ICN Patient Handbook:
              http://www.ic-network.com/handbook/

              Link to the IC Diet:
              http://www.ic-network.com/diet/


              IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

              Comment


              • #22
                Thank you so much...I'm new and in pain often as you can imagine. I see so many horror stories out here, and need to see that people do recover and have a life again. My world has been reduced to my home, my activities totally curtailed - I really miss my life and am hoping to return to it some day. Started Elmiron this week...Elavil next week, then antihistamines. Praying this works...

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                • #23
                  This is such a good thread! its nice to hear about the positives. Ive been an ic sufferer for 22 years. My symptoms and flare ups have deminished considerably from a 10 in severity to a 2 or 3. Today i can go dancing.. i do ceroc dancing. I can go to movies and sit through them without discomfit. I still sit by the isle and the exit to minimise stress so i can slip out if i have to. But i havn't had to for ages. I teach violin and have a reasonable number of students. My lessons can last from half hour to an hour. So i can go in between if i have to. I can hold a feeling of urgency for ages! I can go for long walks. I have an enjoyable sex life. (ic used to interfere there too) I can go to shows and concerts. I play in a band. (fiddle player). I can drink coffee and alcohol in moderate amounts. I can go for long car drives. Usually i am in reletive comfort, but when i have a flare up it is manageable. This is a triumph due to a variety of self help tactics. I have tried the following..

                  osteopathy (aligns the spine... pelvic twist can hinder bladder function), physiotherapy for the bladder...bladder training and drinking water, kegal excercises to strengthen the voiding muscles, acupuncture, warm clay wraps...(very nice comforting treatment highly recommended) massages, diet modification, vitamen/mineral supplements, gone to a naturopath, practice meditation, yoga, deep slow breathing, herbal teas..mind over matter efforts, to plain ignoring the problem efforts. stress reduction. life management tactics... adopting a philosophical attitude...
                  thanks for this thread and i wish you all good health
                  julie

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