Tweet
ICN Memorial/Tribute to Deb?
Could we do some kind of memorial to Deb? She was such an angel and was so kind, I think she deserves such an honor...
-
Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world! -
Absolutely!!!! What do you think would honor her memory.
Jill
Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/
Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!
Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.
-
Some kind of program that promotes understanding, caring, friendship...everything that Deb was and gave. I wish I could throw out some good ideas but my brain is all jumbled from the shock...I was thinking some kind of email program that would be like the ICAngels, kind of like you know how they have hotlines? We could have an email thing or maybe a hotline, I don't know how much those cost, but email might be cheaper and some people are shy about phone calls. Put it in Deb's honor, such a brave, selfless woman she was, a friend to all.Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!Comment
-
I couldn't agree more with this idea and I would love to help in any way. How about something connected to newbie support? Wasn't she the newbie angel?
Alexa
My story of healing and hope http://www.ic-network.com/patientstories/alexa.htmlComment
-
I also think a memorial to Debbie is appropriate. It may be the family will have a suitable memorial in mind.
Debbie was very special to all of us --- she never failed to reach out to help others, even when she was suffering herself.
I still can't believe it.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
I think this is a very good idea. Debbie was one of the most caring, giving people. We will all miss her.
JoleneJolene
"Life is what happens when you are making other plans" John Lennon
IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html
Information for Patients can be found here.
http://www.ic-network.com/patientlinks.html
Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]
Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]
"IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."
Comment
-
I will have to get back to you on this one i'm trying to think of something specail for debbie my heart is truely broken.Medicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!
Comment
-
how about a new page added to the icn for our love ones we have lost. on the page it can have pictures of them and what there lifes was like
Just an idea my mind is still all mixed up right now but it was a thought maybe a bad one but a thought.Medicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!Comment
-
Rhonda, I think that's an excellent idea.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
I also wondered if we could send flowers to the family or to the funeral home from her friends at ICN. I will be more than happy to arrange that if you all think it is ok.My brain is too fried to think of another way to memorialize Deb, but my brain is fried.If there is anything at all I can do, please let me know. grouphugWishing you the best, today, tomorrow, and always!
Sheri GComment
-
I think these are excellent ideas. I'd also like to do something more personal for Deb--Alexa mentioned the Newbie Angel--I wonder if we can do something with that? Or the email thing? I don't know, brain is all jumbled here, like yours, it's a shock...love you all...Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!Comment
-
I wish I could think of something I am just still shocked over the death of Debbie... I'll try to think of something
Brat'The will of God will never take you where the Grace of God will not protect you.'
Comment
-
I really like the idea of a page for memories. I lost a granddaughter 7 years ago. I (and a friend who lost a baby) have started the MaryMadeline Project. We make burial gowns and blankets for stillborn babies or babies that die after birth. We make them out of wedding dresses that people donate. It really helps the healing process to do something to honor the memory of those we lost. Debbie cannot be forgotten, she gave so much.carlyComment
-
thanks guys i'm glad ya'll liked my idea and i'm thankful jill used it for debbie.Medicine taken daily or as needed:
1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
2. MS.Cotin 100mg 3x daily
3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
4. Fentanyl 100 mg Change every 48hrs.
5. Gentamicin 80mg install after each rescue treatment
5 Leviquin 500mg self start as needed.
6. Klonopin 1 or 2 daily as needed.
7. Prosed/DS as 1 every 6hrs as needed.
I have IC, but IC doesn't have me anymore!Comment
-
I am still trying to get my head around losing Debbie, but I think that the ideas mentioned are great. She was just one wonderful lady, she holds a special place in my heart. Iris.Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.Comment
Comment