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If you could share only one thing? or ask one question?

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  • If you could share only one thing? or ask one question?

    .... what would it be?

    I would share that the most important things in my life are family support and understanding from my doctors.

    Question: What is the single thing you feel helps most? and which is most irritating?

    Donna
    Stay safe

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

  • #2
    Figuring out your subtype and what are your triggers are! Otherwise it's always going to feel random and wear you down.
    Diagnosed with IC in 2005, PFD in 2016. My sister has had IC for 21 years and our mother over 30. 66 years of bladder fun combined!

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    • #3
      Educate yourself and keep pushing your doctor / health services. It will take time to get the treatment you need, but it will definitely help to know more about the disease and be able to suggest treatment options (and even just understand the possibilities).
      Male (48) living in Oslo, Norway. Diagnosed (cysto) with BPS/IC with Hunner's lesions on 23 Nov 2015.
      Symptoms: severe bladder pain, bladder cramps, urethral burning, painful urination, rectal spasms, acute retention (requiring self catheterization).
      Treatment: successful hydro w/fulguration on 21 Dec 2015. Complications due to blood clots in bladder, second surgery cleaned it out. Second fulguration in May 2017. Currently (2018) on Uracyst instillations every week. Most symptoms are back. Up 6-10 times per night. Currently waiting for neobladder surgery.
      Medication: Tamsulosin, Vesicare, Betmiga, Paracet, Tramadol when needed
      Other diseases: IBS and chronic asthma, both of which are under control through meds and diet.

      Read My story here at @ICN

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