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If you could share only one thing? or ask one question?

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  • If you could share only one thing? or ask one question?

    .... what would it be?

    I would share that the most important things in my life are family support and understanding from my doctors.

    Question: What is the single thing you feel helps most? and which is most irritating?

    Stay safe

    Elmiron Eye Disease Information Center -
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool

  • #2
    Figuring out your subtype and what are your triggers are! Otherwise it's always going to feel random and wear you down.
    Diagnosed with IC in 2005, PFD in 2016. My sister has had IC for 21 years and our mother over 30. 66 years of bladder fun combined!


    • #3
      Educate yourself and keep pushing your doctor / health services. It will take time to get the treatment you need, but it will definitely help to know more about the disease and be able to suggest treatment options (and even just understand the possibilities).
      Male (born 1970) living in Oslo, Norway. Diagnosed (cysto) with BPS/IC with Hunner's lesions on 23 Nov 2015 after many years of pain.
      Symptoms: severe bladder pain, bladder cramps, urethral burning, painful urination, rectal spasms, acute retention (requiring self catheterization).
      Treatment: Successful neobladder surgery on Dec 7, 2018.

      Read My story here at @ICN