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  • Desperate

    Hi everyone. I’m glad I found this place, because I don’t know where else to turn.

    A while back I got a UTI (my first problem having any kind of infection/problem with my urinary system). My symptoms were constantly feeling like my bladder wasn’t empty even after peeing and frequently peeing (every 15 minutes or so.) Called the doctor, got a test back that said “traces of bacteria” and antibiotics. The antibiotics took away the frequency but the feeling of always needing to pee is still there. Called the doctor again. Got another test done, negative, cultures negative, vaginal swabs also negative. She then told me I need to “train my bladder” by holding my pee. This I don’t understand because I have no problem holding my pee, it’s just this constant feeling like my bladder is full even if it isn’t. Anyway, I tried it. After a month it went away for about two weeks but now it’s back. It came back after a period of acute anxiety, which makes me think IC because I’ve read it can flare with stress. I’ve also been on the diet for weeks now but I’m not seeing improvement really. All I drink is water and I basically live on chicken. Can somebody please tell me does it sound like it could be IC despite only one symptom?? Thanks for reading.

  • #2
    First I'd like to say to the IC Network.

    It can take a while for the symptoms go away --- how long ago is the "while back"? Yes, interstitial cystitis is a possibility, but not necessarily so. One thing you might try is to keep a diary, listing time of day, everything that goes in your mouth, activities, pain levels to see if you can identify anything that might be irritating your bladder.

    Have you seen a urologist? If not, you might want to ask for a referral. I agree that stress can contribute to IC discomfort --- for some reason, stress can have an effect on most problems. I hope you find out what's wrong soon. Not knowing is the worst time.

    Sending healing wishes,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Hi Donna,

      It was about the middle of December when I got the UTI. I just don’t understand why that constant bladder full feeling would vanish for 2 weeks then reappear again if it was just because of the UTI after effects. Is that possible?

      I had sour gummy candy yesterday and while eating it I thought, “this probably isn’t a good idea” even though I didn’t see it on the diet list. As expected, today the full bladder feeling is much worse.

      I’ll be giving the diary a go and seeing a urologist as soon as possible.

      I have a few questions if you wouldn’t mind! Are there any meds that specifically target that full bladder feeling that I should be asking for? How do you cope with bad days? Can IC be made worse by 1. a stomach upset 2. period? Thank you for everything and the welcome.

      Comment


      • #4
        That sour gummy candy could very well have been the problem --- the best food advice I can think of is that if you're not sure --- DON'T. 1. If you have an upset stomach, whether it effects your bladder could be what it was that upset your stomach. 2. It's not unusual for the hormone fluctuations with the menstrual cycle to be problems. There are some ICers who do birth control tablets full time to avoid periods. When I'm having a bad day, I allow myself to baby myself --- I'm retired now so I can head for my recliner and watch movies or read --- and remind myself that tomorrow will be better.

        Warm hugs,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Thank you for all your help, I really appreciate it.

          Comment


          • #6
            Are you feeling any better today?

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Originally posted by ICNDonna View Post
              Are you feeling any better today?

              Donna
              Hi Donna, sorry for the late reply, I had a period of feeling okay but am now dealing with a frequency flare up. This happened after I had a soda during a celebration so I definitely think the signs are pointing towards IC. I’m now trying to get referred to a urologist. Thank you for checking up on me.

              Comment


              • #8
                It does sound like it. If you're still in a flare from the soda, you might want to try 1//4 to 1/2 teaspoon of baking soda in water to see if that helps. It doesn't taste very good (in fact it's awful), but if you add the soda to about a half cup of water, you can then drink some plain water to get rid of the taste.

                Hope that helps.
                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment

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