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  • Hello everyone!

    Hello everyone, sorry for my bad English as it is not my native language. I’m Francesca, 27 years old from Italy. I started having Symptoms almost 4 months ago with urgency and frequency, but it was different every day: some day I went 20 times, some day 15, some day 8 etc and I usually woke up 1/2 Times at night. I had a mild pelvic pain that lasted a couple of hours but most days I was pain free. I went to a urogyn who specializes in IC and she prescribed me D mannose and PEA that is a natural anti inflammatory. I have Been following this therapy for more than 2 months and my frequency and urgency seemed better, but almost 2 weeks ago I noticed that my pelvic pain is a bit worst, nothing unbereable as some of you describes. But it’s more constant and now I have it every day together with burning in my vagina, sometimes a little burning in my urethra. I noticed that urgency and frequency have gottenj a little worst too this couple of weeks. I went to the doctor again and she said that my therapy helped with frequency and urgency and she doesn’t think I have IC. But she gave me 4 drops of amitriptilline at night and told me to take it for 2 months, if I don’t get better I will have a cysto.( she doesn’t want to do hydrodistension but I know only this will give me a diagnosis.)I’ll start the drops tomorrow. I’m so convinced I have IC and believe me my anxiety is out of control, I’m not eating, not sleeping well and I feel lost because what else can cause all of this if not IC. I have IBS too and I noticed that my IBS symptoms got worst too in the last few months. I keep a diary of how many times I go to the restroom, how much water I drink, the food I eat ( because of the ibs I already avoided coffe, alcohol, chocolate and other irritative things, so I had healthy Mediterranean food). As I was saying every day is very different and I can’t understand the reason, I don’t see a correlation with food because eating the same food but one day I feel better, one day not. The only thing that comes to my mind is the fact that the anxiety I’m having right now is worsening the symptoms. I’m sorry for the long post, I know a lot of people here suffer much more than me right now, but I’m so scared that pain will get worst with time and I’m so scared of all of this. I just wanted to ask if any of you had this mild symptoms and maybe they got worst with time?

  • #2
    to the IC Network.

    Something that might help you is the IC diet. If you go to the top of this page and click on ICN FRONT PAGE you will find a link to diet information. If you don't find it easily, I'll help you.

    There are many foods that are healthy for most people, but if you have IC they can cause pain --- an example is tomatoes.

    Sending healing wishes,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Hi Donna, thank you for taking your time to answer me. I saw the IC diet and I noticed that certain food that should be safe, are not for me. For example I noticed that squash (pumpkin), couliflower made my frequency worst the next day, even a small amount. I don’t know if they are bad even for the pain because pain started a couple of weeks ago and I haven’t eaten any of those to avoid frequency and urgency. I’ll try to follow the diet, thanks for your advice.

      Comment


      • #4
        The IC diet isn't 100%, but is okay for most of us. I've only found one thing on the safe list that's a problem for me. If you're finding very many things on the list that are a problem for you, you might want to do an elimination diet.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

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