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Feeling Goo

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  • Feeling Goo

    Hi All,

    After several years of benefitting from this site I wanted to post. I was diagnosed with IC 5 years ago. I have had great medical support (in the Boston area) and am so thankful for it. For about 2 years I was on Nortriptyline daily and very slowly weaned myself off of it!

    I am faithful to the IC diet and drink lots of water. I also did about 8 months of pelvic floor PT and was so thankful to have such a wonderful therapist. In short, I am feeling great and have my life back. I can easily live without coffee of tomatoes!

    One thing I have noticed is that I am beginning to urinate more frequently. When this started I could regularly hold about 10 - 12 oz or urine. I am now down to 8.

    I am wondering if my IC has become OAB? My 96 year old mother recently had a semi-successful Bladder Botox procedure. My mom's life is full but her incontinence bothers her more than any other ailments she has. It has been a game changer for her. She constantly tells me to keep myself in shape so it doesn't happen to her.

    My question - does IC lead to incontinence? Does OAB lead to incontinence? Any thoughts on how to avoid incontinence?

    Thanks,
    Cathy



  • #2
    Try not to worry about it. I have had diagnosed IC for 46 years now and not incontinent. There are times when I hurry to a bathroom because it feels like I will not be able to hold it, but so far I've made it.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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