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Just diagnosed and feel overwhelmed

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  • Just diagnosed and feel overwhelmed

    Hi I am julie. I am still trying to get my head round this. It is horrendous really. I already have nerve pain in pelvic area for 2 years about 8 out of the 24/7.. to have bladder problems now is cruel really. It impacts my life in multiple ways that other people are not aware of. So I feel overwhelmed and tired and so so sore. and I have to say pretty sorry for myself.

  • #2
    I'm so sorry. I'm glad you found this site --- there's a wealth of information here.

    Sending warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I remember being newly diagnosed and I felt just like you - I was scared, fearful, and also feeling sorry for myself. This site has a great deal of information. Your physician/urologist will make suggestions to help you I'm sure. You may find that some things may work for you and some may not. I rarely post now as it has been a bit over 15 years that I was diagnosed. In the beginning I was very strict with my diet. I started using Prelief with my meals. Eventually I was able to add many foods back ( in moderation, of course) and still using the Prelief. I have been on Elmiron since diagnosed and it has helped me although there is controversy about it now due to an eye issue. I have had my eyes checked every 6 months and all is well. My gynecologist recommended Estrogen cream to thicken my vaginal walls so as not to feel the discomfort as much. The combination of the 3 has helped me. I tried hydroxyzine but it wasn't helpful for me. Yet others do well with it. Everyone is different and unfortunately there is not one cookie cutter remedy; sometimes it is trial and error. Physical Therapy & Pelvic Floor Therapy helps certain people also. I was on this site daily for the first year or two of my diagnosis. As things improved I check in once in awhile. I just wanted to respond as I remember being newly diagnosed and felt helpless. My urologist is the one who told me to get on this site. I'm glad I did. I found a lot of support, and had plenty of questions. Read through topics and success stories. My improvement was slow, but it did eventually come. I am wishing you well, a great deal of positivity, and hoping you find the relief you need.

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