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  • iArulil instillations

    Sorry guys - no idea if I’m in the right place - I find this site difficult to navigate lol! Just wondered if any of you have tried iArulil bladder instillations? I’ve just finished a 6 week course - my lovely urologist is very hopeful that I’ll see some benefit. I found the process painful but stuck with it as he said he’s had a good success rate with it. If it doesn’t help he’s out of ideas as I’ve tried elmiron, amitryptaline, gabapentin and IC diet - I also have fibromyalgia which he says makes me harder to treat as that can also cause bladder symptoms. Any reviews of iArulil would be good - and also re the IC diet - it’s rather restrictive which is fine if it works - do you find it really makes a difference? Thanks everyone!

  • #2
    Originally posted by Snowcat View Post
    Sorry guys - no idea if I’m in the right place - I find this site difficult to navigate lol! Just wondered if any of you have tried iArulil bladder instillations? I’ve just finished a 6 week course - my lovely urologist is very hopeful that I’ll see some benefit. I found the process painful but stuck with it as he said he’s had a good success rate with it. If it doesn’t help he’s out of ideas as I’ve tried elmiron, amitryptaline, gabapentin and IC diet - I also have fibromyalgia which he says makes me harder to treat as that can also cause bladder symptoms. Any reviews of iArulil would be good - and also re the IC diet - it’s rather restrictive which is fine if it works - do you find it really makes a difference? Thanks everyone!
    Unfortunately, the last I know iarulil isn't approved for use in the United States yet --- please let me know if this works well for you. We do have members in Canada and the UK so hopefully, you'll hear from some who have tried it.


    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      IaLuril has the best success rate in research studies for bladder instillations. It's a combination of chondroitin and hyaluronate. I've worked with many patients who have used it successfully in Europe but, as Donna shared, it's still not approved for use down here.

      Diet is critically important for IC subtype 1 - Hunner's lesions and IC Subtype 2 - Bladder Wall Driven, especially if you have estrogen atrophy in your bladder or urethra. The bladder is essentially injured in both of these circumstances... thus acid placed in the wound would certainly trigger more pain and discomfort. But, it does depend upon your subtypes. If your symptoms are the result of pelvic floor injury or tension, diet modification may not be needed.

      We just released a book which talks about them... IC 101. Also, you can watch a video - The Five Subtypes of IC here - www.ic-network.com/videos/

      Jill
      Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

      Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

      Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






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      • #4
        Thank you so much for such a helpful reply - I believe I am subtype 2 so will definitely stick to the diet! I’ve completed 6 ailuril instillations so far so will see how that goes too! It’s so good to have the forum and feel supported! Thanks again!

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