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  • ICNDonna
    replied
    to the IC Network. I'm glad you found us.

    Yes, diet can be the most important step in getting IC under control. It may take a while to learn which foods and drinks are your biggest problem, but most of us do.

    It sounds like you are on the right track and have found a doctor who is being helpful. I do have a hint about taking pyridium --- it stains! If your toilet gets stains, try vinegar. And you might want to wear panty liners when taking it.

    I have heard good reports on Desert Harvest Aloe.

    Please feel free to post questions --- there are many of us here to try to help you feel better.

    Sending gentle hugs,
    Donna

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  • Summer2021
    replied
    Thank you Sue. I appreciate your response. I just started the IC diet.

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  • sueworld
    replied
    Hi there! Not used that myself, but have you tried the IC diet? Thats what helped me for going on 20 years until I developed pernicious anaemia and It stopped working.

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  • Summer2021
    started a topic Hello, so glad to have found you all!

    Hello, so glad to have found you all!

    Hi, I am recently diagnosed with IC. My main symptoms are Urethra pain (constant), heaviness, and burning while urinating. My Urologist has me on Oxybutynin, Pyridum, and 600 mg of Motrin every 6 hours. I am going to call a PT tomorrow. I am looking for any advice and recommendations since this is all new to me. The pain is unbearable and debilitating. Please help! Has anyone had luck with the Desert Harvest Aloe?
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