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Wondering if this could be IC and just looking for support.

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  • #16
    Just an update. Have strung together a couple of decent days which is good. All blood and urine tests have come back normal. Doctor does t think a urologist is necessary. But he recommended a physio for pelvic floor exercises. Not sure if they will be of benefit but happy to try anything.

    thinking this coming week I’ll try to add a few things back into the diet and see how things go!

    edit, forgot to mention they diagnosed me with ‘overactive or irritated bladder’ in the basis of everything else negative.

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    • #17
      Well went for a long walk and added back in some red capsicum (bell pepper) and had a nice steak (was sick of chicken) for dinner. Not having a good night now... ugh
      Last edited by matt009au; 08-22-2021, 02:16 PM.

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      • #18
        I don't have a problem with beef --- was the pepper a spicy one? Did you have anything to drink with dinner? dessert? I hope you can figure out what caused your symptoms to worsen.


        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #19
          Just a plain red capsicum. Not spicy at all.

          haven’t drunk anything except good old water since this all started.

          Sigh. Really getting depressed over this whole thing tbh.

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          • #20
            Just wondering if anyone has had much success with pelvic floor relaxation? Was back at the GP who gave me some sleeping tablets and suggested that I visit a physio for pelvic floor exercises.also recommended that I switch to low fat dairy.

            ive been using a heat pack at night between the legs which seems to at least dull the sensation that I need to urinate some. Would this indicate muscle involvement ?

            matt

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            • #21
              Originally posted by matt009au View Post
              Just wondering if anyone has had much success with pelvic floor relaxation? Was back at the GP who gave me some sleeping tablets and suggested that I visit a physio for pelvic floor exercises.also recommended that I switch to low fat dairy.

              ive been using a heat pack at night between the legs which seems to at least dull the sensation that I need to urinate some. Would this indicate muscle involvement ?

              matt
              If you are one who has pelvic floor dysfunction (PFD), physical therapy can be a huge help --- it think it could be a good idea to see a PT to at least evaluate possible muscle involvement.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #22
                Just thought I’d post an update. I’ve been sticking with the IC diet since the last post and have noticed some improvements. My wife had another health episode last weekend. The next day was bad - not sure if it is normal for a delayed reaction to stress like this. But bladder bounced back to behaving the following day.

                ive taken the family away for this week to try and distress. Keeping strictly to the diet is a bit harder (no kitchen in the room). The first two days had been good. But did some cheese tasting today (only the mild motzerrllas, boccinici and cheddar) but seem to be having a flare up a few hours after this. Thinking that maybe I’ll try knocking out cheese from the diet as well.

                ive also been going to the physio who specialises in men’s health and have been doing the exercises religiously.

                the symptoms have improved on the whole which is good. But still feel like my bladder is on a knifes edge just waiting to flare at one wrong step.

                The gp also referred me to a urologist - booked in for November.

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                • #23
                  Thank you for the update --- I'm glad you're feeling some improvement. Some of us have problems with some kinds of cheese --- I know I'm okay with (and I can't spell some of them) motzerrela, mild cheddar, string cheese, which I still eat like a child, pulling off the "strings" --- I avoid sharp cheddar.

                  In these times it can be hard to avoid stress --- with winter coming and most areas seeing increases in virus cases. I hope you continue to improve.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment

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