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Is Elmiron necessary for hunner’s ulcer?

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  • Is Elmiron necessary for hunner’s ulcer?

    Hi, my name is Büşra and I have IC over a year but recently been diagnosed. I was supposed to be on Elmiron right now, but I am scared and I do not take it. Because I do not trust my doctor. He is not knowledgable about IC and I have hunner’s ulcer. I will change my doctor, but right now I cannot. I kind of regret that I did not take Elmiron properly. Should IC patient with Hunner’s ulcer use it definitely. Can anyone please lighten me up. I feel so helpless

  • #2
    to the IC Network.

    To answer your question --- no, you do not have to take Elmiron --- there are many other treatment options available. Whether you opt for any medication or treatment is your decision to make. In the case of Elmiron --- I encourage you to research long term side effects of this medication --- there are reports of vision problems with long term use. I have Hunner's ulcers and am not able to tolerate Elmiron due to a headache side effect, but I do well without it.

    Are you following an IC diet? If not, I suggest you begin today. You'll find a link to diet information in my signature below.

    Sending warm healing wishes,
    Stay safe

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool